Alaska Hemophilia Association
1200 Airport Heights Drive, Suite 101
Anchorage, AK 99508
United States
Arizona Bleeding Disorders
Asociación Puertorriqueña de Hemofilia y Condiciones de Sangrado
PMB 633, P.O. Box 29005
San Juan, PR 00929
United States
Bleeding Disorder Foundation of Washington
20126 Ballinger Way NE #165
Shoreline, WA 98155
United States
Bleeding Disorders Alliance Illinois
Bleeding Disorders Alliance of North Dakota
Bleeding Disorders Association of Northeastern New York
333 Broadway Ste 210
Troy, NY 12180
United States
Bleeding Disorders Association of South Carolina
Green Gate Office Park, 25 Woods Lake Road, Ste #300
Greenville, SC 29607
United States
Bleeding Disorders Foundation of Florida
1350 North Orange Ave, Suite 227
Winter Park, FL 32789-4955
United States
Bleeding Disorders Foundation of North Carolina
130 Iowa Lane, Suite 203
Cary, NC 27511
United States
Bleeding Disorders of Kentucky
Bleeding Disorders of the Heartland
Central California Bleeding Disorders Foundation
P.O. Box 163689
Sacramento, CA 95816-9689
United States
Colorado Chapter, National Bleeding Disorders Foundation
13199 E. Montview Blvd, Suite 200
Aurora, CO 80045
United States
Eastern Pennsylvania Bleeding Disorders Foundation
937 Paoli Pike, #1028
West Chester, PA 19380
United States
Florida Bleeding Disorders Association
4901 NW 17th Way, Suite 204
Fort Lauderdale, FL 33309
United States
Gateway Bleeding Disorders Association
Great Lakes Hemophilia Foundation
12700 West Bluemound Road Suite 130
Elm Grove, WI 53122
United States
Greater Ohio Bleeding Disorders Foundation
Hawaii Chapter, National Bleeding Disorders Foundation
75-5660 Kopiko St., Ste. C7 #294
Kailua Kona, HI 96740
United States
Hemophilia Association of New Jersey
197 Route 18 South, Suite 201 N.
North East Brunswick , NJ 08816
United States
Hemophilia Association of San Diego County
3550 Camino del Rio North, Suite #105
San Diego, CA 92108-1747
United States
Hemophilia Association of the Capital Area
6412 Brandon Avenue, #412
Springfield, VA 22150
United States
Hemophilia Foundation of Michigan
Hemophilia Foundation of Southern California
959 East Walnut Street, Suite 114
Pasadena, CA 91106
United States
Hemophilia of Georgia
Hemophilia of Indiana
Idaho Chapter, National Bleeding Disorders Foundation
Kentucky Hemophilia Foundation
Lone Star Bleeding Disorders Foundation
5600 Northwest Central Rd, Suite 140
Houston, TX 77092-8224
United States
Louisiana Hemophilia Foundation
Mary M. Gooley Hemophilia Center
Midwest Hemophilia Association
Nebraska Chapter, National Bleeding Disorders Foundation
8031 W Center Rd, Suite 301
Omaha, NE 68124
United States
Nevada Chapter, National Bleeding Disorders Foundation
7500 W. Lake Mead Blvd, Suite 9 #458
Las Vegas, NV 89128
United States
New England Hemophilia Association
New York City Hemophilia Chapter Inc.
Northern California Bleeding Disorders Foundation
305 Vineyard Town Center #132
Morgan Hill, CA 95027
United States
Northwest Ohio Hemophilia Foundation
Oklahoma Hemophilia Foundation
Pacific Northwest Bleeding Disorders
5060 SW Philomath Blvd, RMB #311
Corvallis, OR 97333
United States
Rocky Mountain Bleeding Disorders Association
1627 W. Main St, Suite 142
Bozeman, MT 59715
United States
Sangre de Oro, Bleeding Disorders Foundation of New Mexico
4600 Lincoln Rd NE, Suite 22
Albuquerque, NM 87109
United States
Southwestern Ohio Hemophilia Foundation
11 West Monument Ave. Suite 605
Dayton, OH 45402
United States
Tennessee Hemophilia and Bleeding Disorders Foundation
201 East Main Street, Ste 240
Murfreesboro, TN 37130
United States
Texas Central Bleeding Disorders
Tri-State Bleeding Disorder Foundation
635 W Seventh St, Suite 407
Cincinnati, OH 45203-1549
United States
Upper Midwest Bleeding Disorders Alliance
1056 Highway 96 E., PO Box 270070
Vadnais Heights, MN 55127
United States
Virginia Bleeding Disorders Foundation
West Virginia Chapter, National Bleeding Disorders Foundation
P.O. Box 4214
Morgantown, WV 26504-4214
United States
Western New York BloodCare
Western Pennsylvania Bleeding Disorders Foundation
433 State Avenue Suite 4
Beaver, PA 15009
United States
On April 17, 2025, the global bleeding disorders community will unite to commemorate World Hemophilia Day with a groundbreaking theme that shines a spotlight on a critically underserved population. The World Federation of Hemophilia (WFH) announced on October 1st the new theme, "Access for All: Women and Girls Bleed Too" as the central focus for the upcoming year's observance.
This theme represents a significant step forward in addressing the often-overlooked needs of women and girls with bleeding disorders (WGBDs). Despite advancements in hemophilia treatment and care, WGBDs continue to face challenges in diagnosis, treatment, and overall quality of life.
The National Bleeding Disorders Foundation (NBDF) has expressed enthusiasm for this theme, recognizing its potential to drive meaningful change within the community. "We are thrilled to see the WFH, inspired by the International Women & Girls with Bleeding Disorders Committee’s advocacy prioritizing the needs of women and girls with bleeding disorders," said Dawn Rotellini, Chief Operating Officer of NBDF. "This theme aligns perfectly with our ongoing efforts to ensure equitable care for all individuals affected by bleeding disorders."
The 2025 theme addresses several key issues:
- Underdiagnosis: Many women and girls with bleeding disorders go undiagnosed or face significant delays in diagnosis due to misconceptions about the prevalence of these conditions in females.
- Inadequate Treatment: Even when diagnosed, WGBDs often receive suboptimal care compared to their male counterparts.
- Lack of Awareness: There is a general lack of awareness about how bleeding disorders manifest in women and girls, both among the public and healthcare providers.
- Impact on Quality of Life: Undiagnosed or poorly managed bleeding disorders can significantly impact the quality of life for women and girls, affecting education, career, and personal relationships.
As April 17, 2025, approaches, the bleeding disorders community stands united in its commitment to ensuring that all individuals, regardless of gender, have access to the diagnosis, treatment, and care they need. The theme "Access for All: Women and Girls Bleed Too" serves as a powerful reminder that bleeding disorders do not discriminate, and neither should our healthcare systems.
For more information on World Hemophilia Day 2025 and how you can get involved, visit NBDF’s website, WFH’s website or contact your local NBDF chapter. Remember to use the official hashtags #WHD2025 #NBDFUnites
By Kyla Clark, NBDF Director of PR and Communications
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