Stay informed with the latest updates for the inheritable blood disorders community.

NBDF & Community
A candlelight vigil
In Memoriam: Carol Kasper, MD
Advocacy & Legislative
Capitol Hill picture
Government Relations Update - June 2025
Advocacy & Legislative
NBF Logo News Option 1
NBDF Statement on Passage of HR 1
Industry
Two hands holding blood drop cut outs
Investigational Data on VWD and Glanzmann Thrombasthenia…
Peer-Reviewed Journal Summaries
A doctor sitting across from her patient and discussing care
New Paper Features Narrative History of Hemophilia Screening in Women
Industry
BioMarin Provides Update Including Next Steps for Investigational Gene Therapy
Trial Data for Roche Investigational SubQ Hemophilia Therapy Presented…
NBDF & Community
A doctor sitting across from a woman reviewing documents and charts
Pathway to Cures – Investing in Innovation and Access
Medical
A group of health care providers standing together
New Accredited Activity Explores Individualized Care for von…
Medical
Research Blood Disorder Vial
FDA Approved Test Measures Concizumab-mtci in Hemophilia Patients
Industry
Gene Therapy Helix
Integration of Spark into Roche Group Set, Hemophilia Gene…
Government Relations Update
Government Relations Update – May 2025
Press Releases
NBDF graphic with 8 blood drops
NBDF’s Keri Norris Finalist for Fierce Healthcare Award
NBDF & Community
A group of people discussing mental health
The NFRC Features Mental Health Resources for Bleeding Disorders Community…
NBDF & Community
A researcher holding a beaker and dropper
UPDATE: NBDF’s Venture Philanthropy Fund: Pathway to Cures
Medical
A doctor with a father and son
FDA Grants Jivi Expanded FDA Indication for Younger Hemophilia A Patients…