Government Relations Update – May 2024FederalCopay Accumulator Adjusters: The HELP Copays Act (HR 830 and S. 1375) has seventeen cosponsors in the Senate and 134 House cosponsors, an increase of 23 cosponsors since NBDF’s Washington…
NBDF's Wednesday Webinar SeriesJoin us for an insightful webinar as we introduce the HANDI and Medical Programs Team at the National Bleeding Disorders Foundation (NBDF). Discover a wealth of resources, referrals, and…
The National Bleeding Disorders Foundation (NBDF) is thrilled to announce the upcoming launch of the revamped Steps for Living website, your ultimate educational resource for living with inheritable blood and bleeding disorders. Whether you're a…
It’s June and with Summer almost upon us, it’s a time to head outside for more fun in the sun! It’s also a great time to consider a few resources on maintaining healthy joints before engaging in outdoor activities. This edition of HANDI Highlights…
A manufacturing deviation at NovoNordisk's Danish facility has led to the potential underfilling of vials for NovoSeven©, crucial treatments for hemophilia and other blood disorders. While alternative treatments exist, the NovoSeven shortage could…
The National Bleeding Disorders Foundation (NBDF) is pleased to announce the availability of a series of educational videos on the use of novel non-factor therapies. These videos were designed for clinicians who regularly prescribe therapies for…
The National Bleeding Disorders Foundation (NBDF) is pleased to announce a series of educational videos on clinical issues in women, girls, and people with the propensity to menstruate (WGPPM). They were created for physicians, physician assistants…
The National Bleeding Disorders Foundation (NBDF) is proud to be an official charity of the 2024 TCS New York City Marathon on November 3, 2024. The 26.2 mile New York City Marathon takes you through the streets of New York City for a one-of-a…
It has been several decades since the publishing of large U.S. studies of neurodevelopment and other cognitive functions in children and young adults with hemophilia. Results of this earlier research that evaluated hemophilia and neurocognitive…