A new review published in the European Journal of Haematology describes the challenges inherent in managing both bleeding and excessive clot risk in patients with primary immune thrombocytopenia (ITP). Primary ITP is a rare…
The Women’s Retreat is a weekend-long educational retreat open to women who are affected by bleeding disorders as patients, spouses, or caregivers. This year, we are taking our women on a road trip to the Gulf! We have secured two beach…
Pathway to Cures (P2C) is the National Bleeding Disorders Foundation’s venture philanthropy fund created specifically to accelerate the development of cures and therapies across all inheritable blood and bleeding disorders.As a flexible partner…
Data provided by the National Bleeding Disorders Foundation (NBDF) was referenced recently in the coverage of a tragic case in Chelsea that took a dark turn for 3-year-old Yael Guardado Prudencio, a child with hemophilia and a seizure disorder. This…
On April 2, 2024, 8 News Now covered our Las Vegas Chapter's Winter Wine Walk with Stephanie Dupree. Stephanie Dupree, NBDF Development Manager of the NV Chapter, said, "This is our 9th annual Winter wine fest started by a bunch of wine lovers, and…
New York, NY, April 18, 2024 – Pathway to Cures (P2C) announced its collaborative partnership with Afimmune to support the development of Epeleuton as a potential therapeutic for Sickle Cell Disease (SCD).Pathway to Cures is the…
Treatment guidelines play an important role in managing patients with chronic diseases, including hemophilia. Treatment guidelines offer guidance on treatment selection and patient choices, taking into account outcomes, and balance both efficacy and…
MASAC Document 283 - Physical Therapy Management for People with Bleeding Disorders and Chronic Pain
Authors:Nancy Durben, PT, MSPT, PCS (1), J. Nicole Clark, PT, DPT (2), Jennifer R Newman, PT, MSPT (3), Lora Joyner, PT, MS (4), Ryan J. Rushton, PT, DPT, MHA, CLT (5), Lena M. Volland, PT, PhD(c) (6), Tyler Buckner, MD (2…
The landscape for hemophilia treatment options has greatly evolved in the last few years. Most recently is the addition of gene therapy for the treatment of bleeding disorders. {Gene therapy adds a new gene or replaces or repairs a mutated gene in a…
New documents issued by NBDF’s Medical and Scientific Advisory Council (MASAC) cover a wide range of topics relevant to bleeding disorder patients in the U.S. and abroad. They encompass recommendations for treatment with licensed therapies, chronic…