Speakers: Samantha Carlson, LMSW, and Halli Benasutti, Ph.D.Join Samantha Carlson, LMSW Director of Research & Halli Benasutti, Ph.D., Director of Research Grants, as they outline the 2024 funding opportunities…
A new paper published in The Lancet Haematology journal includes data from the HOPE-B clinical trial program that is investigating the hemophilia B gene therapy etranacogene dezaparvovec – the product’s commercial name is Hemgenix® (CSL Behring).…
Celebrate World Hemophilia Day: Raise Awareness and Empower Lives Join us on April 17th as we come together to celebrate World Hemophilia Day! This global event is dedicated to raising awareness about hemophilia and other bleeding…
U.S. Hemophilia Treatment Centers (HTCs) are once again participating in the National HTC Patient Satisfaction Survey (PSS). It is launched every three years to help glean valuable feedback from HTC patients and caregivers, with the overarching goal…
Financing a higher education poses considerable challenges, especially as yearly tuition and other school-related costs continue to rise. For many individuals and families considering a higher education, awareness of any opportunities to defray…
For Immediate Release CONTACT: Kyla Clark National Bleeding Disorders Foundation 347-920-0047kclark@bleeding.org NBDF Announces Transition from Hemophilia.org to Bleeding.org New…
Join us for the 15th Annual Run for Their Lives 5K happening in-person on September 21, 2024! Your participation will help raise awareness of bleeding disorders and help raise needed funds for education and advocacy. Run through beautiful tree…
Join us on Saturday, September 21, 2024, at the North Park Swimming Pool for the 16th Annual Unite for Bleeding Disorders Walk! The Unite for Bleeding Disorders Walk brings our community together. It unites families with bleeding disorders and…