By committing to health equity, diversity, and inclusion (HEDI) through a variety of efforts, NBDF strives to make a positive difference in the inheritable blood and bleeding disorders community’s equity and future. Join our HEDI team as they review…
The U.S. Food and Drug Administration (FDA) has approved Fabhalta® (iptacopan), the first oral therapy for the treatment of adults with a rare blood disorder known as paroxysmal nocturnal hemoglobinuria (PNH). It is manufactured by Novartis.
PNH…
Philip M. Gattone, M.Ed., is the president and chief executive officer of the National Bleeding Disorders Foundation (NBDF). He was named president in February 2024. Gattone is a seasoned leader dedicated to amplifying the impact of…
Plan to attend the 2024 International Plasma Protein Congress (IPPC) in Athens this April! The IPPC is an annual event organized by PPTA which covers topics including the need to increase plasma collection in Europe, regulatory and policy…
Federal:
Copay Accumulator Adjusters: On Jan. 16, the Department of Health and Human Services withdrew its appeal of a U.S. District Court decision in September vacating the 2021 Notice of Benefit and Payment Parameters.…
NBDF employees are talented, dynamic, and passionate individuals dedicated to supporting the inheritable blood and bleeding disorders community. They value diversity, accountability, service, respect, and support.Phil Gattone, M.Ed., NBDF President…
We are pleased to announce that the Emergency Care for Patients with von Willebrand Disease treatment manual is now available in a Spanish language version. Funding for the translation, Cuidado de Emergencia a Pacientes con…
A new study published in the journal Blood Coagulation & Fibrinolysis, looked at the impact of hereditary factor X deficiency (HFXD) on patients and caregivers in the United States. HFXD is an ultra-rare bleeding disorder that occurs in…
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Speaker: Ahmad M. Tarawah, M.D.
Glanzmann's Thrombasthenia is an autosomal recessive bleeding disorder due to functional…