Community Voices in Research (CVR) is a community-powered registry that gather information to help researchers understand what it is like to live with a bleeding disorder.
Join us to learn more about how CVR works, the impact it has,…
The National Bleeding Disorders Foundation (NBDF) and Hemophilia Federation of America (HFA) are deeply concerned by the World Health Organization’s (WHO) recommendation of cryoprecipitate (pathogen-reduced and non-pathogen-reduced) in the 23rd…
Florence Carolwicz is the manager of accounting for NBDF. Florence's experience spans from accounts payable and receivable to cash management and revenue recognition to preparing financial statements and tax documents. Before joining NBDF, she…
Great Lakes Hemophilia Foundation’s (GLHF) 12th annual Milwaukee’s Best Bloody contest will be held Sunday, February 25 from 10:30 am until 2:30 pm at the Italian Community Center, 631 E. Chicago St., Milwaukee. Milwaukee area bars…
The first hemophilia A gene therapy infusion to be delivered outside of a clinical trial setting was recently given to a patient in California.The patient, an adult with severe hemophilia A, received a single infusion of Roctavian™…
The National Bleeding Disorders Foundation (formally NHF)’s 76th Annual Bleeding Disorders Conference (BDC) will take place September 12-14, 2024 in Atlanta! We are excited to bring the bleeding disorders community together again for three…
The National Bleeding Disorders Foundation Physical Therapy Working Group Mentorship program is now taking applications. The vision for this program is to improve confidence, efficiency, and effectiveness of Physical Therapy services for…
*/
En EspañolMost individuals will have symptoms of an inhibitor, such as requiring more and/or higher doses of factor replacement products. However, not all individuals will recognize these signs and inform their health care provider.An inhibitor…
Great Lakes Hemophilia Foundation’s (GLHF) 3rd annual Green Bay’s BestBloody contest will be held Sunday, May 5 from 10:30 am until 2:30 pm at the Resch Expo. Green Bay area bars and restaurants enjoy the…
En EspañolTreatment for people who have an inhibitor can be complicated. There are three main types of treatment that can be used: