Jacob Murdock is the Chapter Executive Director for Nevada and discusses the importance of telehealth. Telehealth is widely used amongst the inheritable blood and bleeding disorders community in Nevada due to its large land mass. Most residents live…
Meet Brendan Hayes!NBDF's staff is comprised of so many talented, dedicated people who use their skills to uplift the inheritable blood and bleeding disorders community.Brendan Hayes is one of those remarkable individuals. The…
Marie Hollenhorst, MD, PhD is a physician-scientist and non-malignant hematologist. She is Assistant Professor of Medicine at Harvard Medical School and Associate Physician in the Division of Hematology at Brigham and Women's…
I am a Family Nurse Practitioner at the Northwell Hemostasis and Thrombosis Clinic (HTC) trained in Primary Care and then had specialized training in Hemostasis. I anticipate completing a Doctor in Nursing Practice terminal degree in December 2023.…
While the majority of women with von Willebrand disease (VWD) will experience heavy menstrual bleeding (HMB) often associated negative impacts on overall health and quality of life, available data relevant to effective treatment is limited.In an…
Brett Spitale, VP of Advancement The National Bleeding Disorders Foundation bspitale@hemophilia.org (212) 328-3741 Giving Tuesday steps into November with a brand-new sneaker (The National Bleeding Disorders…
Federal :
Copay Accumulator Adjusters: On September 29, the U.S. District Court for the District of Columbia vacated the U.S. Department of Health and Human Services’ (HHS) 2021 Notice of Benefit and Payment…
Two new documents have been issued by the NBDF’s Medical and Scientific Advisory Council (MASAC), which periodically writes recommendations and advisories on treatment, research, and other general health concerns of the inheritable bleeding…
The National Bleeding Disorders Foundation (NBDF) is pleased to announce the availability of a series of video presentations on fundamental topics relevant to current gene therapy for hemophilia.These talks were originally delivered live and in-…
Findings of a new study have uncovered specific disparities in hemophilia care by focusing on the use of immune tolerance therapy (ITI) in people with hemophilia A and an inhibitor. ITI is achieved through long term and uninterrupted exposure to…