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Copay Accumulator Adjusters: On September 29, the U.S. District Court for the District of Columbia vacated the U.S. Department of Health and Human Services’ (HHS) 2021 Notice of Benefit and Payment…
Two new documents have been issued by the NBDF’s Medical and Scientific Advisory Council (MASAC), which periodically writes recommendations and advisories on treatment, research, and other general health concerns of the inheritable bleeding…
The National Bleeding Disorders Foundation (NBDF) is pleased to announce the availability of a series of video presentations on fundamental topics relevant to current gene therapy for hemophilia.These talks were originally delivered live and in-…
Findings of a new study have uncovered specific disparities in hemophilia care by focusing on the use of immune tolerance therapy (ITI) in people with hemophilia A and an inhibitor. ITI is achieved through long term and uninterrupted exposure to…
The U.S. Food and Drug Administration (FDA) has approved a recombinant enzyme replacement therapy for people with congenital thrombotic thrombocytopenic purpura (cTTP), an ultra-rare blood disorder. Adzynma, which is manufactured by Takeda…
Get a glimpse into the world of healthcare providers caring for ultra-rare bleeding disorders patients. Our panelists, with diverse backgrounds, will share their experiences, highlight unique challenges, and emphasize the importance of patient…
Explore the main findings from the Women, Girls, and People who have or had the Potential to Menstruate (WGPPM) Summit 2023, including actionable recommendations emerging from the WGPPM Summit white paper. Hear from an engaging panel of Summit…
Come discuss some of the leading advancements in care for the bleeding disorders community.
NBDF's Wednesday Webinars are a free education series open to providers and community members. Register to attend and learn about the latest in research,…
November is recognized as Transgender Health Awareness Month. This is a time to reflect on the experiences of transgender and gender nonconforming individuals seeking and receiving health care. It is also an important reminder of…
Join us Thursday, Dec. 7, at 2 p.m. ET for the next Research Journal Club with Tammuella Chrisentery-Singleton, MD, the chief science officer at the American Thrombosis and Hemostasis Network. She will discuss a recent study published in…