About coreHEM-MHODeveloped through an initiative co-led by NBDF, coreHEM Mental Health Outlook questionnaire (coreHEM-MHO) is a patient-reported outcome measurement (PROM) instrument that assesses mental health outlook (including psychological…
The THSNA Summit is a collaboration of the 13 leading non-profit organizations (including NBDF) in the fields of Thrombosis and Hemostasis. The Summit provides a focused forum for over 1,000 attendees with an interest in bleeding and clotting…
Recently, Pathway to Cures (P2C) -- NBDF's venture philanthropy fund -- announced exciting updates. Click below to read important press releases.
PATHWAY TO CURES NAMES FIRST MEMBERS TO SCIENTIFIC ADVISORY GROUP
PATHWAY TO…
Presenting the National Research Blueprint for Public Comment
Speaker: Maria Santaella, Vice President of Research Strategy, NBDF & Dr. Michael Recht, Chief Medical and Scientific Officer, NBDF
The National…
Beyond the Guidelines: Challenging Scenarios of Diagnosing von Willebrand Disease
Speaker: Yazan Abou-Ismail, MD, Assistant Professor of Hematology at University of Utah & Jasmine Pauldurai, Education Specialist, NBDF…
Untold Journeys: A Glimpse into Ultra-Rare Bleeding DisordersModerator: Michael DeGrandpre, Community AdvocatePanelist 1: Paxton Mills, Person with Platelet Storage Pool DeficiencyPanelist 2: Troy Longman, Person with…
Iron Deficiency and Anemia: An Underappreciated Complication in von Willebrand Disease
Speaker: Jillian Simoneau, MD, University of Michigan
Iron deficiency and anemia are common but frequently underappreciated in…
FOR IMMEDIATE RELEASE
MEDIA CONTACT:
Brett Spitale
212-328-3769
bspitale@hemophilia.org
National Bleeding Disorders Foundation raises $200,000 at the
most successful Red Tie…