Beyond the Guidelines: Challenging Scenarios of Diagnosing von Willebrand Disease
  Beyond the Guidelines: Challenging Scenarios of Diagnosing von Willebrand Disease Speaker: Yazan Abou-Ismail, MD, Assistant Professor of Hematology at University of Utah & Jasmine Pauldurai, Education Specialist, NBDF…
Untold Journeys: A Glimpse into Ultra-Rare Bleeding Disorders
 Untold Journeys: A Glimpse into Ultra-Rare Bleeding DisordersModerator: Michael DeGrandpre, Community AdvocatePanelist 1: Paxton Mills, Person with Platelet Storage Pool DeficiencyPanelist 2: Troy Longman, Person with…
Iron Deficiency and Anemia: An Underappreciated Complication in von Willebrand Disease
  Iron Deficiency and Anemia: An Underappreciated Complication in von Willebrand Disease Speaker: Jillian Simoneau, MD, University of Michigan Iron deficiency and anemia are common but frequently underappreciated in…
National Bleeding Disorders Foundation raises $200,000 at the most successful Red Tie Soiree to date.
FOR IMMEDIATE RELEASE MEDIA CONTACT: Brett Spitale 212-328-3769 bspitale@hemophilia.org National Bleeding Disorders Foundation raises $200,000 at the most successful Red Tie…
The Importance of Telehealth
Jacob Murdock is the Chapter Executive Director for Nevada and discusses the importance of telehealth. Telehealth is widely used amongst the inheritable blood and bleeding disorders community in Nevada due to its large land mass. Most residents live…
Employee Highlight - Meet Brendan Hayes!
Meet Brendan Hayes!NBDF's staff is comprised of so many talented, dedicated people who use their skills to uplift the inheritable blood and bleeding disorders community.Brendan Hayes is one of those remarkable individuals. The…
Towards Improved Diagnostic Assays for Immune Thrombocytopenia Syndromes by Defining the Glycosylation of Platelet Glycoprotein IIb
Marie Hollenhorst, MD, PhD is a physician-scientist and non-malignant hematologist. She is Assistant Professor of Medicine at Harvard Medical School and Associate Physician in the Division of Hematology at Brigham and Women's…
Implementing Primary Care Screening at the HTC
I am a Family Nurse Practitioner at the Northwell Hemostasis and Thrombosis Clinic (HTC) trained in Primary Care and then had specialized training in Hemostasis. I anticipate completing a Doctor in Nursing Practice terminal degree in December 2023.…
Study Results Encourage Discussion of Therapeutic Options for VWD Patients with Menorrhagia
While the majority of women with von Willebrand disease (VWD) will experience heavy menstrual bleeding (HMB) often associated negative impacts on overall health and quality of life, available data relevant to effective treatment is limited.In an…
Giving Tuesday is November 28
Brett Spitale, VP of Advancement The National Bleeding Disorders Foundation bspitale@hemophilia.org (212) 328-3741   Giving Tuesday steps into November with a brand-new sneaker (The National Bleeding Disorders…