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Home
  • Who We Are
    • Our Story
      • Mission & History
      • What We Do
      • What Do We Value?
      • Health Access
      • NBDF Reports
      • Financial Statements
      • Media Newsroom
      • Educate to Elevate
      • The National Hemophilia Foundation Has a New Name
      • The Red Thread: 75th Anniversary Celebration
    • Our Team
      • Staff
      • Board of Directors
      • MASAC
      • Meet the NYLI
      • Nursing Working Group
      • Physical Therapy Working Group
      • Social Work Working Group
      • LEE Research Advisory Council
    • Our Partners
      • Partners In Progress
      • The ACT Initiative
      • Red Tie Society
      • CDC Coop Agreement
      • Pathway to Cures
    • Careers
      • What Do We Value?
      • Career Opportunities
      • Volunteer Opportunities
  • Bleeding Disorders A-Z
    • Overview
      • Fast Facts
      • What is a Bleeding Disorder?
      • History
      • Types of Bleeds
      • Inhibitors
      • Women and Bleeding Disorders
    • Types
      • Hemophilia A
      • Hemophilia B
      • Von Willebrand Disease
      • Other Factor Deficiencies
      • Inherited Platelet Disorders
    • Treatment
      • Comprehensive Medical Care
      • MASAC For You
      • Treatment Guidelines (MASAC)
      • Current Treatments
      • Innovative Therapies
      • Clinical Trials
      • Shared Decision-Making
      • Hemophilia Treatment Centers
    • Healthcare Coverage
      • Choosing an Insurance Plan
      • Private Insurance
      • Public Insurance
      • Health Insurance Toolkit
  • Educational Programs
    • Education
      • Bleeding Disorders Conference
      • Inhibitor Education
      • Steps for Living
      • Online Education
      • Rare Bleeding Disorders
      • Von Willebrand Disease
      • Mental Health
      • Gene and Innovative Therapies
      • Women
      • Educational Programming
      • Clotting Cascade
    • Training
      • Youth Leadership (NYLI)
    • Outreach
      • THRIVE
      • THRIVE - en español
      • Undiagnosed
      • Guías Culturales
  • Advocacy
    • Federal Priorities
      • Access to Care
      • Federal Programs
      • Medicare
      • Medicaid
      • Blood & Blood Product Safety
      • Make All Copays Count
    • State Priorities
      • Utilization Management
      • Patient Out-of-Pocket Expenses
      • Medicaid
    • How You Can Take Action
      • Voices for Policy Change!
      • Washington Days
      • Advocacy Do’s and Don’ts
      • 6 Steps for Grassroots Advocacy
      • Tell Your Story
    • Managed Care & Payers
      • Collaborating on Coverage
      • Quality of Care Guidelines
      • CME/CE Webcast Series
      • Educational Web Portal
      • Quality Improvement & Cost Management
  • Research
    • Research Projects
      • Foundation Research
      • Funded by Foundation
      • Presented at Our Conference
      • Research Journal Club
      • Research Roundtable
      • Clinical Trial Essentials
      • coreHem Mental Health Tool
    • Fund Your Research
      • Judith Graham Pool Postdoctoral Research Fellowship
      • NBDF-Sanofi Career Development Award
      • Nursing Excellence Fellowship
      • Physical Therapy Excellence Fellowship
      • Social Work Excellence Fellowship
    • Community Voices in Research
      • What is CVR?
      • How & Why Should I Participate?
      • Impact on Research
      • Frequently Asked Questions
      • Login to CVR
    • Bleeding Disorders Research Collaborative
      • What is the Bleeding Disorders Research Collaborative?
      • The BDRC Structure and Research Priorities
      • Lived Experience Experts (LEEs) Leading the Way
      • How to Get Involved
      • Our Journey Together
      • BDRC Resources
  • Healthcare Professionals
    • Guidelines on Care
      • Comprehensive Care
      • MASAC Documents
      • MASAC Minutes
      • Products Licensed (US)
      • Emergency Management
      • Snapshots of VWD Guidelines
    • Education & Resources
      • NBDF-Takeda Clinical Fellowship Program
      • NBDF’s Collaborative Learning Exchange
      • Online Education for Providers
      • Live & Online Learning (Partners)
      • Rare Coagulation Disorders Resource Room
      • Peer-reviewed Journals
      • NBDF Publications
      • Other Associations
    • Allied Healthcare
      • Nursing
      • Physical Therapy
      • Social Work
      • Other Interdisciplinary Healthcare Providers
  • Community Resources
    • Request Information
      • Contact Us
      • The Neil Frick Resource Center
      • Read Our Publications
      • Subscribe for Email Updates
      • Get HemAware Magazine
      • Newsletter Archive
      • Wednesday Webinar Series
    • Resources Near You
      • Chapters
      • Hemophilia Treatment Centers
      • Clinical Trials
      • Bleeding Disorders Camps
      • Community Voices in Research
    • Financial Assistance
      • Scholarships
      • Patient Assistance Programs
  • Make a Difference
    • Donate
      • Donate Now
      • Donor Advised Funds
      • Donate Securities or Cryptocurrency
      • Give Monthly
      • Planned Giving
    • Join Us
      • Become a Corporate Partner
      • Bleeding Disorders Awareness Month
      • Find a Walk
      • Participate in Research/CVR
      • Why Give?
    • More than a Donation
      • Create Your Own Fundraiser
      • Fundraise on Social Media
      • Run in a Marathon
      • Matching Gifts
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Paxton Mills
Paxton Mills is a third-year student majoring in biochemistry and molecular biology at the University of Richmond. With the National Bleeding Disorders Foundation, Paxton is a National Youth Leadership Institute (NYLI) Representative on the Research…
Eliza VanZweden
Eliza VanZweden is a biomedical engineer who works in research and development of pharmaceutical products for animal health. As a patient diagnosed shortly after birth with Glanzmann thrombasthenia, Eliza advocates for individuals with bleeding…
Factor X Day Celebration
During this special Factor X Day event, you will have a chance to connect with others who also have Factor X Deficiency and meet members of their support network. You’ll hear from people who have been affected by this condition and learn about…
Giving Tuesday 2023
November 28 is Giving Tuesday! Save the date to donate.
Photo-Voice Project Kick-Off
[PLEASE DO NOT ATTEND THIS MEETING IF YOU ATTENDED THE FIRST KICK OFF] Has your life been impacted by joint bleeds and pain? Do you love to take pictures? Then this unique project is for you! As a Photo-Voice project…
Photo-Voice Project Kick-Off #1
Join Us for the Photo-Voice Project Kick-Off! Has your life been impacted by joint bleeds and pain? Do you love to take pictures? Then this unique project is for you! What is Photo-Voice? Photo-Voice is a community lead way of…
Two New MASAC Documents Focus Substance Use Facilities Access and Treatment Recommendations
The National Bleeding Disorders Foundation (NBDF) is pleased to announce that two new documents have been issued by the Medical and Scientific Advisory Council (MASAC).MASAC, which generated the documents during their recent meeting at last month’s…
Virtual Insurance and Reimbursement Conference 2023
  Please join us for this year’s Insurance and Reimbursement Conference which be held virtually November 1 and 2. This year we will be discussing critical insurance issues including Medicaid unwinding, gene therapy, public and private…
"I'm Fine": A Panel Discussion Led by Patrick James Lynch
  "I'm Fine": A Panel Discussion Led by Patrick James Lynch Speakers: Patrick James Lynch, Dr. Michael Recht, and Community Members In this engaging panel conversation, six people with inherited bleeding disorders and…
Updated FDA Blood and Plasma Donation Guidelines: What the Bleeding Disorders Community Needs to Know
  Updated FDA Blood and Plasma Donation Guidelines: What the Bleeding Disorders Community Needs to Know Speakers: Matt Delaney, Government Relations Specialist, NBDF Matt Delaney, Government Relations Specialist at…

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