The National Bleeding Disorders Foundation (NBDF) is pleased to announce that two new documents have been issued by the Medical and Scientific Advisory Council (MASAC).MASAC, which generated the documents during their recent meeting at last month’s…
Please join us for this year’s Insurance and Reimbursement Conference which be held virtually November 1 and 2. This year we will be discussing critical insurance issues including Medicaid unwinding, gene therapy, public and private…
"I'm Fine": A Panel Discussion Led by Patrick James Lynch
Speakers: Patrick James Lynch, Dr. Michael Recht, and Community Members
In this engaging panel conversation, six people with inherited bleeding disorders and…
Updated FDA Blood and Plasma Donation Guidelines: What the Bleeding Disorders Community Needs to Know
Speakers: Matt Delaney, Government Relations Specialist, NBDF
Matt Delaney, Government Relations Specialist at…
Federal:
HELP Copays Act: Congress was in recess for August and returned just after Labor Day. The All Copays Count Coalition continues to work with Congressional offices regarding H.R. 830 and S. 1375.…
In a win for the National Bleeding Disorders Foundation (NBDF) and the bleeding disorders community at large, on September 29, the United States District Court for the District of Columbia ruled that insurers can no longer…
A recent publication in the journal Haemophilia, represents a great opportunity to shed light on an ultra-rare condition that is perhaps lesser known to the broader bleeding disorders community. The article’s focus is the sole therapy approved by…