From NHF to NBDF: A Time for Change
Speaker: Foundation Staff and Merz Branding
At the 2023 Bleeding Disorders Conference, the foundation announced its rebranding to the National Bleeding Disorders Foundation to create…
HEMGENIX (etranacogene dezapavovec-drlb) Patient Eligibility and Treatment Steps
Speaker: Dr. Richard Lemons
Learn how patients can qualify for HEMGENIX and how it works. Special thanks to CSL Behring for their generous support…
Revisions: 279Preamble MASAC is aware of multiple reports of persons with bleeding disorders being denied access to residential mental health and/or substance use disorder treatment facilities, despite being…
Burden on parents of children with moderate or severe von Willebrand disease: The impact of clinical data
Speakers: Anna Olsson and Linda Myrin Westesson
NBDF's Wednesday Webinars are a free education series open to…
Federal Update on Telehealth Policy
Speaker: Kyle Zebley, American Telemedicine Association
NBDF's Wednesday Webinars are a free education series open to providers and community members. Register to attend and learn about the…
Eliza VanZweden is a biomedical engineer who works in research and development of pharmaceutical products for animal health. As a patient diagnosed shortly after birth with Glanzmann thrombasthenia, Eliza advocates for individuals with bleeding…
During this special Factor X Day event, you will have a chance to connect with others who also have Factor X Deficiency and meet members of their support network. You’ll hear from people who have been affected by this condition and learn about…
November 28 is Giving Tuesday! Save the date to donate.
[PLEASE DO NOT ATTEND THIS MEETING IF YOU ATTENDED THE FIRST KICK OFF]
Has your life been impacted by joint bleeds and pain?
Do you love to take pictures?
Then this unique project is for you!
As a Photo-Voice project…
Join Us for the Photo-Voice Project Kick-Off!
Has your life been impacted by joint bleeds and pain?
Do you love to take pictures?
Then this unique project is for you!
What is Photo-Voice?
Photo-Voice is a community lead way of…