Recommendations versus Practice: Physical Therapy at HTCs
  Join us to hear the results of a Pilot Study of US HTC Physical Therapists' Concordance of PT MASAC Recommendations and Educational Needs. NBDF's Wednesday Webinars are a free education series open to providers and community members.…
New year, new health plan: Are your medications covered?
  Formulary restrictions are one of the primary access barriers to inheritable blood and bleeding disorders treatment. With health plan coverage changes happening again this year, join NBDF and HFA to learn about these restrictions, how we'…
Community Voices in Research
  Community Voices in Research (CVR) is a community-powered registry that gather information to help researchers understand what it is like to live with a bleeding disorder. Join us to learn more about how CVR works, the impact it has,…
NBDF and HFA Address Concerns on WHO's Recommendation of Cryoprecipitate
The National Bleeding Disorders Foundation (NBDF) and Hemophilia Federation of America (HFA) are deeply concerned by the World Health Organization’s (WHO) recommendation of cryoprecipitate (pathogen-reduced and non-pathogen-reduced) in the 23rd…
Florence Carlowicz
Florence Carlowicz is the Manager of Accounting for NBDF. Florence's experience spans from accounts payable and receivable to cash management and revenue recognition to preparing financial statements and tax documents. Before joining NBDF, she…
GLHF: Milwaukee's Best Bloody
Great Lakes Hemophilia Foundation’s (GLHF) 12th annual Milwaukee’s Best Bloody contest will be held Sunday, February 25 from 10:30 am until 2:30 pm at the Italian Community Center, 631 E. Chicago St., Milwaukee. Milwaukee area bars…
Patient Receives First Hemophilia A Gene Therapy Outside a Clinical Trial
The first hemophilia A gene therapy infusion to be delivered outside of a clinical trial setting was recently given to a patient in California.The patient, an adult with severe hemophilia A, received a single infusion of Roctavian™…
Bleeding Disorders Conference 2024
 The National Bleeding Disorders Foundation (formally NHF)’s 76th Annual Bleeding Disorders Conference (BDC) will take place September 12-14, 2024 in Atlanta! We are excited to bring the bleeding disorders community together again for three…
NBDF PTWG Mentorship Program
The National Bleeding Disorders Foundation Physical Therapy Working Group Mentorship program is now taking applications.  The vision for this program is to improve confidence, efficiency, and effectiveness of Physical Therapy services for…
How can I tell if I have developed an inhibitor?
*/ En EspañolMost individuals will have symptoms of an inhibitor, such as requiring more and/or higher doses of factor replacement products. However, not all individuals will recognize these signs and inform their health care provider.An inhibitor…