Though it is generally recognized in the bleeding disorders community that physical therapists (PTs) are essential members of the core interdisciplinary teams of U.S. hemophilia treatment centers (HTCs), understanding of their educational/resource…
Washington Days: Registration for Washington Days is now open and closes on January 15th. Register today to join advocates nationwide in Washington D.C. on March 6-8, 2024 to advocate for the HELP Copays Act as well as key…
Join us to hear the results of a Pilot Study of US HTC Physical Therapists' Concordance of PT MASAC Recommendations and Educational Needs.
NBDF's Wednesday Webinars are a free education series open to providers and community members.…
Formulary restrictions are one of the primary access barriers to inheritable blood and bleeding disorders treatment. With health plan coverage changes happening again this year, join NBDF and HFA to learn about these restrictions, how we'…
Community Voices in Research (CVR) is a community-powered registry that gather information to help researchers understand what it is like to live with a bleeding disorder.
Join us to learn more about how CVR works, the impact it has,…
The National Bleeding Disorders Foundation (NBDF) and Hemophilia Federation of America (HFA) are deeply concerned by the World Health Organization’s (WHO) recommendation of cryoprecipitate (pathogen-reduced and non-pathogen-reduced) in the 23rd…
Florence Carolwicz is the manager of accounting for NBDF. Florence's experience spans from accounts payable and receivable to cash management and revenue recognition to preparing financial statements and tax documents. Before joining NBDF, she…
Great Lakes Hemophilia Foundation’s (GLHF) 12th annual Milwaukee’s Best Bloody contest will be held Sunday, February 25 from 10:30 am until 2:30 pm at the Italian Community Center, 631 E. Chicago St., Milwaukee. Milwaukee area bars…
The first hemophilia A gene therapy infusion to be delivered outside of a clinical trial setting was recently given to a patient in California.The patient, an adult with severe hemophilia A, received a single infusion of Roctavian™…
The National Bleeding Disorders Foundation (formally NHF)’s 76th Annual Bleeding Disorders Conference (BDC) will take place September 12-14, 2024 in Atlanta! We are excited to bring the bleeding disorders community together again for three…