The 2024 Red Tie Soiree was a resounding success! Thanks to the generosity of our supporters, we raised over $215,000 to support vital research, treatment, and care for those affected by bleeding disorders. The evening was filled with…
Elevating Research with Community Voices: How Lived Experiences Drive Progress in Bleeding Disorders
Date: Wednesday, August 7, 2024 Time: 2:00 PM - 3:00 PM Location: Zoom (Registration Preferred) NBDF's Wednesday Webinar SeriesJoin us for an insightful…
Government Relations Update – July 2024FederalBiden Leaves the Race, VP Harris the Likely Candidate: On July 21, President Biden announced his decision to remove himself from the 2024…
Pfizer has announced positive topline results from their phase 3 clinical study of giroctocogene fitelparvovec, the company’s investigational hemophilia A gene therapy. The clinical trial program, known as AFFINE, is…
As we enter the “dog days” of summer with high temperatures and heat weighing folks down throughout much of the US, it’s easy to become lethargic about one’s health, particularly when it comes to addressing issues of pain. This month, HANDI has…
Date: Wednesday, August 21, 2024 Time: 2:00 PM - 3:00 PM Location: Zoom (Registration Preferred) NBDF's Wednesday Webinar SeriesJoin us for an…
Chloe Gardner is the chapter outreach coordinator for the Nevada Chapter of NBDF, where her passion for health education and bettering the lives of individuals with rare conditions drives her involvement in community outreach programs. As a person…
NBDF is excited to inform U.S.-based clinicians of new live and virtual educational opportunities from overseas! This coming fall, our friends at the Irish Haemophilia Society (IHS) will be offering a series of…
Location: Rooms B102/B103Be among the first to experience an exclusive sneak preview of footage and scenes from the upcoming documentary about Ryan White, an iconic figure in the history of bleeding disorders advocacy, and featuring…