Call to Sponsor HELP Copays Act With Former State Representative, Randi Clites
Featuring: Advocate Expert, Randi ClitesDescription: Hidden dangers like copay accumulator adjusters and maximizers in our healthcare system prevent co-pay assistance from counting towards patients'…
Healthcare System Blind Spots Called Out With Former Representative, Randi Clites
Featuring: Advocate Expert, Randi Clites Description: The Federal Government's lack of enforcement of ACA regulations on ERISA plans allows insurers to sidestep crucial prescription benefit…
General Public Feels Cost Burden by Maximizer Systemic Loopholes With Advocacy Expert, Perry Jowsey
Featuring: Advocate Expert, Perry JowseyDescription: Hidden healthcare loopholes like copay accumulator adjusters and maximizers are driving up costs and impeding access to essential medications, impacting…
PSA 2: Combatting Hidden Healthcare Hazards - Copay Accumulator Adjusters
Featuring: Advocate Expert, Gabbi FloresDescription: Unveiling the harsh realities of copay accumulator adjuster programs, this PSA urges action to protect access to essential medications and alleviate the…
The Urgency for Bipartisan Support With Advocacy Expert, Perry Jowsey
Featuring: Advocate Expert, Perry JowseyDescription: Unity in Action: How Bipartisan Efforts in Colorado Led to Meaningful Healthcare Reform with SB-195.Discussion Questions: What…
BioMarin to Narrow Its Commercial Focus for Hemophilia A Gene Therapy
BioMarin recently announced that they will be changing the scope of their efforts to manufacture and market their gene therapy product ROCTAVIAN.™ The product was first approved in the summer of 2023 for the treatment of adults…
How to Get Involved
The BDRC represents an opportunity to redefine the treatment of bleeding disorders. This important initiative has only been possible thanks to the incredible contributions of so many community members and leaders since 2020. Never before have we had…
Exploiting Mouse Models to Elucidate the Cellular and Molecular Mechanisms Involved in the Pathogenesis of Platelet Storage Pool Deficiencies
BDRC Resources
NRB Presentations2021 State of the Science Summit Recordings2022 Workshop Presentations2024 NRB Summit Presentations NRB PublicationsExpert Review of Hematology Supplement (March 2023)Haemophilia 2022 - Big picture initiatives in bleeding…
New Resource Compilation on Gene Therapy for Hemophilia
The National Bleeding Disorders Foundation (NBDF) is excited to share a new collection of resources about Gene Therapy, especially for those in the Hemophilia community. This collection includes easy-to-understand scientific…