The Grim Reality of Maximizers, A Patient Story with Maria S.
Featuring: Patient Advocate, Maria S.Description: Navigating life pre and post copay accumulators and maximizers: the hidden language that's pushing families to the brink of bankruptcy and denying patients…
Bleeding Disorders of Kentucky
Bleeding Disorders of Kentucky (BDoKY) is dedicated to improving the quality of life for individuals with inheritable bleeding disorders through education, engagement, and support.
Alane Foley
An In Depth Explainer on the Maximizer Issue with Advocate Leader, Sue Martin
Featuring: Advocate Expert, Sue MartinDescription: Navigating the treacherous terrain of rare disease healthcare, battling copay accumulator adjusters, and fighting for fair access to life-saving…
PSA 1: Support Access to Affordable Medications HELP Copays Act
Featuring: Advocate Expert, Bridget TyreyDescription: Empower patients and protect access to essential medications with H.R.830 - the HELP Copays Act, fighting against harmful copay accumulator and…
What Happens After You Tell a Legislator Your Story? With Carson Knight
Featuring: Advocacy Expert, Carson Knight Description: Your story doesn't just fade away after sharing it with a legislator; it becomes a catalyst for real change, sparking a chain of impactful…
Understanding Open Enrollment for Insurance with Health Expert Alejandra Lopez
Featuring: Alejandra Lopez Description: Unlocking the Doors to Quality Healthcare: Exploring the Ins and Outs of Open Enrollment.Discussion Questions: What are the key differences…
Employer vs Private Insurance Explainer with Health Expert Alejandra Lopez Featuring: Alejandra Lopez
Featuring: Alejandra Lopez Description: Discover the nuances between employer-provided insurance and private insurance available through the marketplace to make informed healthcare coverage decisions.…
What Role Does Your HTC Play in Treatment Access? with Health Expert Alejandra Lopez
Featuring: Alejandra Lopez Description: Unlocking Hemophilia Care: Your HTC, a gateway to expert care and support.Discussion Questions: What are the potential challenges individuals…
A Mothers’ Tenacity to Receive Adequate Treatment With Dee W.
Featuring: Patient Advocate, Dee W.Description: From despair to hope: A mother's journey navigating von Willebrand's Type 3 and advocating for life-changing treatments, proving that relentless advocacy and…