As we enter the “dog days” of summer with high temperatures and heat weighing folks down throughout much of the US, it’s easy to become lethargic about one’s health, particularly when it comes to addressing issues of pain. This month, HANDI has…
Date: Wednesday, August 21, 2024 Time: 2:00 PM - 3:00 PM Location: Zoom (Registration Preferred) NBDF's Wednesday Webinar SeriesJoin us for an…
Chloe Gardner is the chapter outreach coordinator for the Nevada Chapter of NBDF, where her passion for health education and bettering the lives of individuals with rare conditions drives her involvement in community outreach programs. As a person…
NBDF is excited to inform U.S.-based clinicians of new live and virtual educational opportunities from overseas! This coming fall, our friends at the Irish Haemophilia Society (IHS) will be offering a series of…
Location: Rooms B102/B103Be among the first to experience an exclusive sneak preview of footage and scenes from the upcoming documentary about Ryan White, an iconic figure in the history of bleeding disorders advocacy, and featuring…
Featuring: Patient Advocate, Maria S.Description: Navigating life pre and post copay accumulators and maximizers: the hidden language that's pushing families to the brink of bankruptcy and denying patients…
Bleeding Disorders of Kentucky (BDoKY) is dedicated to improving the quality of life for individuals with inheritable bleeding disorders through education, engagement, and support.
Featuring: Advocate Expert, Sue MartinDescription: Navigating the treacherous terrain of rare disease healthcare, battling copay accumulator adjusters, and fighting for fair access to life-saving…