In a session that felt more like a heartfelt conversation among friends than a formal presentation, the National Bleeding Disorders Foundation (NBDF) research team opened our eyes to a powerful truth: the most valuable experts in…
At this year's Bleeding Disorders Conference, Samantha Carlson and Kristie Harvey-Semi led a session that went beyond our usual discussions of coagulation factors and treatment plans. Instead, we found ourselves exploring the complex history of…
NBDF’s education team unveiled a game-changing update to its "Steps for Living" initiative at the 2024 Bleeding Disorders Conference, marking a new era in patient education.Lina Volland, Director of Education at NBDF, highlighted the need for change…
As the sun set on the final day of the Bleeding Disorders Conference (BDC), the atmosphere shifted from professional to playful. The closing night event in the Omni Grand ballroom transformed the conference into a vibrant celebration of community,…
The Capitol Connection session at this year's Bleeding Disorders Conference transformed complex policy into tangible hope for patients. As attendees filled the room, conversations ranged from insurance worries to advocacy strategies, setting the…
Speaker: Dr. Lindsey A. GeorgeFVIII Expression Durability after AAV Gene Transfer for Hemophilia A: The goal of gene therapy for patients with hemophilia A is to safely impart long-term stable factor FVIII expression that predictably…
Speakers: Dr. Len Valentino, Dr. Barbara Konkle, Dr. Glenn Pierce, Dr. Jill Johnsen, Mark Skinner, JD., and Shellye Horowitz.Join us to discover the latest updates on "My Life, Our Future." This collaborative effort seeks to advance…
The National Bleeding Disorders Foundation (NBDF) is proud to support Reflections Atlanta, an innovative event aimed at raising awareness about the importance of diversity in clinical trials. The event will take place on October 13th, 2024, in…
NBDF Launches "Voices for Policy Change" Video Series!Voices for Policy Change is a resource designed to educate, empower, and mobilize on important legislative issues related to bleeding disorders advocacy,…
Download NBDF's Social Media Toolkit Celebrate World Hemophilia Day on April 17th!Join us on April 17, 2025, as we come together to celebrate World Hemophilia Day! This global event is dedicated to raising…