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Home
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    • Our Story
      • Mission & History
      • What We Do
      • What Do We Value?
      • Health Access
      • NBDF Reports
      • Financial Statements
      • Media Newsroom
      • Educate to Elevate
      • The National Hemophilia Foundation Has a New Name
      • The Red Thread: 75th Anniversary Celebration
    • Our Team
      • Staff
      • Board of Directors
      • MASAC
      • Meet the NYLI
      • Nursing Working Group
      • Physical Therapy Working Group
      • Social Work Working Group
      • LEE Research Advisory Council
    • Our Partners
      • Partners In Progress
      • The ACT Initiative
      • Red Tie Society
      • CDC Coop Agreement
      • Pathway to Cures
    • Careers
      • What Do We Value?
      • Career Opportunities
      • Volunteer Opportunities
  • Bleeding Disorders A-Z
    • Overview
      • Fast Facts
      • What is a Bleeding Disorder?
      • History
      • Types of Bleeds
      • Inhibitors
      • Women and Bleeding Disorders
    • Types
      • Hemophilia A
      • Hemophilia B
      • Von Willebrand Disease
      • Other Factor Deficiencies
      • Inherited Platelet Disorders
    • Treatment
      • Comprehensive Medical Care
      • MASAC For You
      • Treatment Guidelines (MASAC)
      • Current Treatments
      • Innovative Therapies
      • Clinical Trials
      • Shared Decision-Making
      • Hemophilia Treatment Centers
    • Healthcare Coverage
      • Choosing an Insurance Plan
      • Private Insurance
      • Public Insurance
      • Health Insurance Toolkit
  • Educational Programs
    • Education
      • Bleeding Disorders Conference
      • Inhibitor Education
      • Steps for Living
      • Online Education
      • Rare Bleeding Disorders
      • Von Willebrand Disease
      • Mental Health
      • Gene and Innovative Therapies
      • Women
      • Educational Programming
      • Clotting Cascade
    • Training
      • Youth Leadership (NYLI)
    • Outreach
      • THRIVE
      • THRIVE - en español
      • Undiagnosed
      • Guías Culturales
  • Advocacy
    • Federal Priorities
      • Access to Care
      • Federal Programs
      • Medicare
      • Medicaid
      • Blood & Blood Product Safety
      • Make All Copays Count
    • State Priorities
      • Utilization Management
      • Patient Out-of-Pocket Expenses
      • Medicaid
    • How You Can Take Action
      • Voices for Policy Change!
      • Washington Days
      • Advocacy Do’s and Don’ts
      • 6 Steps for Grassroots Advocacy
      • Tell Your Story
    • Managed Care & Payers
      • Collaborating on Coverage
      • Quality of Care Guidelines
      • CME/CE Webcast Series
      • Educational Web Portal
      • Quality Improvement & Cost Management
  • Research
    • Research Projects
      • Foundation Research
      • Funded by Foundation
      • Presented at Our Conference
      • Research Journal Club
      • Research Roundtable
      • Clinical Trial Essentials
      • coreHem Mental Health Tool
    • Fund Your Research
      • Judith Graham Pool Postdoctoral Research Fellowship
      • NBDF-Sanofi Career Development Award
      • Nursing Excellence Fellowship
      • Physical Therapy Excellence Fellowship
      • Social Work Excellence Fellowship
    • Community Voices in Research
      • What is CVR?
      • How & Why Should I Participate?
      • Impact on Research
      • Frequently Asked Questions
      • Login to CVR
    • Bleeding Disorders Research Collaborative
      • What is the Bleeding Disorders Research Collaborative?
      • The BDRC Structure and Research Priorities
      • Lived Experience Experts (LEEs) Leading the Way
      • How to Get Involved
      • Our Journey Together
      • BDRC Resources
  • Healthcare Professionals
    • Guidelines on Care
      • Comprehensive Care
      • MASAC Documents
      • MASAC Minutes
      • Products Licensed (US)
      • Emergency Management
      • Snapshots of VWD Guidelines
    • Education & Resources
      • NBDF-Takeda Clinical Fellowship Program
      • NBDF’s Collaborative Learning Exchange
      • Online Education for Providers
      • Live & Online Learning (Partners)
      • Rare Coagulation Disorders Resource Room
      • Peer-reviewed Journals
      • NBDF Publications
      • Other Associations
    • Allied Healthcare
      • Nursing
      • Physical Therapy
      • Social Work
      • Other Interdisciplinary Healthcare Providers
  • Community Resources
    • Request Information
      • Contact Us
      • The Neil Frick Resource Center
      • Read Our Publications
      • Subscribe for Email Updates
      • Get HemAware Magazine
      • Newsletter Archive
      • Wednesday Webinar Series
    • Resources Near You
      • Chapters
      • Hemophilia Treatment Centers
      • Clinical Trials
      • Bleeding Disorders Camps
      • Community Voices in Research
    • Financial Assistance
      • Scholarships
      • Patient Assistance Programs
  • Make a Difference
    • Donate
      • Donate Now
      • Donor Advised Funds
      • Donate Securities or Cryptocurrency
      • Give Monthly
      • Planned Giving
    • Join Us
      • Become a Corporate Partner
      • Bleeding Disorders Awareness Month
      • Find a Walk
      • Participate in Research/CVR
      • Why Give?
    • More than a Donation
      • Create Your Own Fundraiser
      • Fundraise on Social Media
      • Run in a Marathon
      • Matching Gifts
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Anticuerpo Biespecífico
Obtenga más información sobre la terapia con anticuerpos biespecíficosUn tipo de opción de tratamiento para la hemofilia A es la terapia con anticuerpos biespecíficos. En este vídeo 3D mostraremos cómo funciona este tratamiento en la cascada de…
New Documents Cover Bleeding Disorders, Bone Health, Mental Health Facility Access
The National Bleeding Disorders Foundation (NBDF) is pleased to announce that three new documents have been issued by the Medical and Scientific Advisory Council (MASAC). MASAC create recommendations and advisories on treatment, research, and…
Washington Days 2024
.flexlogos { margin: 0; padding: 0; display: flex; justify-content: center; align-items: center; } .logo-container { display: flex; flex-wrap: wrap; justify-content: space-around; max-width: 800px…
Government Relations Update - October 2024
Government Relations Update – October 2024  Election Day is November 5th.  Please remember to cast your vote and ensure that your…
Bleeding Disorders Conference 2025
Connect with others, learn, and find support. Discover new treatments and share experiences at this informative and inspiring event.
Elucidating the Innate Immune Response to Factor IX through a Hemophilia B Mouse Model
Huong Chau, PhD, earned her Bachelor of Science in Biomolecular Engineering from Santa Clara University in 2019 and her Ph.D. in Integrative Pathobiology from University of California, Davis in 2024. She is currently a postdoctoral…
The Role of Tissue Factor in Blood Coagulation Activation and Bleeding risk in Mice and Humans
Marisa Brake, PhD, is a postdoctoral fellow at Beth Israel Deaconess Medical Center in Boston, MA. She earned her PhD in Biomedical Sciences from Oakland University in Michigan. Dr. Brake studies how differences in our genes can…
Outreach in Rural Maine: Identifying New Patients and Establishing New Satellite Sites for New and Established Patients
Louise Baca, MSN, RN, has over 40 years of healthcare experience, primarily specializing in oncology. She has worked in various settings, including inpatient oncology, outpatient infusion, clinical research, and as a nursing instructor. For the past…
Identifying and Addressing Gaps in Care Among Menstruating Individuals in Utah
CC is a Hematology Social Worker & Health Equity Specialist at the Utah Center for Bleeding and Clotting Disorders at Primary Children’s Hospital in Salt Lake City, UT. She works primarily with children and adolescents with bleeding disorders,…
Assessing the Therapeutic Effects of Exercise on Vascular Access, Trypanophobia, and Kinesiophobia in Patients with Hemophilia
John “Jack” DeLoach, DPT, specializes in outpatient pediatrics and early intervention. He has worked at UF Health Rehab Center and Kids on the Move in Gainesville for the past three years, treating a wide range of patients in clinical, home, and…

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