The National Bleeding Disorders Foundation (NBDF) has awarded six exceptional researchers and healthcare professionals with prestigious fellowships to advance bleeding disorders research and care. These awards are part of NBDF's $22 million…
The World Federation of Hemophilia (WFH) is currently seeking feedback from users of the WFH Guidelines for the Management of Hemophilia. The survey includes nine questions focused primarily on users’ experience and preferences, with the goal of…
Federal2024 Election & What to Expect for the End of the YearBeginning in 2025 with the 119th Congress and the January 20th Presidential Inauguration, Republicans will take control of the White House and the two chambers of…
A new study published in the journal Blood Advances describes a new initiative focused on traditionally underserved and underdiagnosed subgroup within the bleeding disorders community – hemophilia carriers/females with hemophilia. The study…
Star Therapeutics, a clinical stage biotechnology company headquartered in San Francisco, CA, recently announced new interim clinical trial data for their investigational von Willebrand disease therapy VGA039. The data comes from VIVID 2, a phase 1…
Sanofi has announced positive results from their pivotal LUNA 3 study, a phase 3 clinical trial of rilzabrutinib, the company’s investigational oral therapy developed to treat persistent or chronic primary immune thrombocytopenia (ITP). Primary…
The HANDI team hopes everyone will soon be enjoying all the warmth of the holiday season! To close the year, December HANDI Highlights is dedicated to new and emerging novel technologies for the treatment of people with bleeding disorders.…
Atlanta-based Expression Therapeutics recently announced phase 1 clinical trial results based on ET3, the company’s investigational gene therapy. ET3 is developed with novel lentiviral vectors. This type of therapy uses repurposed…
Dr. Metz has been active and passionately involved with the bleeding disorders since his son with Hemophilia A was born 37 years ago. He served for a total of 26 years on the Board of HFSC including 3 terms as its president. He also was committed to…
Tamsen Bhachech currently serves as Deputy General Counsel of Regulatory Compliance for a global technology company where she's responsible for the organization's overall compliance program. With over twenty years of legal experience, including…