FOR IMMEDIATE RELEASE
Ilana Ostrin
Senior Director of Public Relations and Communications
iostrin@hemophilia.org
212-328-3769
Upcoming Wednesday Webinar Schedule Released
Free series continues throughout spring and summer months…
Learn More About HEMA Biologic’s Latest Treatment Option for the Hemophilia Community
Speaker: Dr. Guy Young
NHF's Wednesday Webinars are a free education series open to providers and community members. Register to attend and…
You’re invited to NHF’s Spring '23 Research Journal Club (RJC) event on Thursday, May 25th at 2:00pm EST. Don’t miss this special discussion titled "My Life Our Future Repository Study: HLA Variants and Inhibitor Development in Hemophilia A: A…
Gene Therapy: A Breakthrough Era for Hemophilia B. Introducing Hemgenix®️ (Etranacogene Dezaparvovec-Drlb)
Speaker(s): Dr. Guy Young, Dr. Tammuella Singleton, and Dr. Debra Bensen-Kennedy
NHF's Wednesday Webinars are a free…
Federal Updates:
HELP Copays Act: S. 1375, a companion bill to H.R. 830, was introduced April 28 in the U.S. Senate by Sens. Marshall (R-KS), Kaine (D-VA), Murkowski (R-AK), Markey (D-MA), and Ernst (R-IA…
By donating, you are extending critical support to the community affected by inheritable blood disorders, regardless of the amount you contribute. Your donation enables the foundation to undertake essential initiatives such as researching better…
Replaces: 277INTRODUCTION Successful gene therapy will require broad-based, multi-stakeholder participation to define patient eligibility, educate health care providers, educate persons with hemophilia (PWH) and families, and…