Researchers from the Children’s Healthcare of Atlanta and Emory University recently published the results of a small study investigating the subject of guilt in mothers of children with hemophilia (CWH).
Anonymous electronic surveys were…
Akorn Pharmaceuticals, one of several companies that manufactures and markets the product aminocaproic acid, recently filed for chapter 7 bankruptcy and subsequently closed. For those unfamiliar with the product, aminocaproic acid is an…
Answering Your Questions on the Change to the FDA's Blood Donation Policy
Read through these FAQs to learn more about this recent change. Scroll to the bottom to learn where to send any further questions. Sources are also…
The foundation's staff is comprised of dedicated people use their talents to help the blood and bleeding disorders community.
A new member of the team is Chloe Fellwock, a communications assistant who joined began her tenure in June 2022. A…
Raising the Bar for Joint Health
Speaker(s): Dr. Annette von Drygalski
NHF's Wednesday Webinars are a free education series open to providers and community members. Register to attend and learn…
To end Bleeding Disorders Awareness Month and celebrate National Doctors Day, Dr. Aaron Chen shares his story of how living with thalassemia inspired his calling as a physician. Watch his interview or read the full transcript below.
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Federal Updates:
Washington Days Recap: Nearly 400 volunteer advocates attended Washington Days March 8-10th and participated in 235 meetings with Members of Congress and staff. The focus of this year…
Sanofi recently announced that results of two clinical studies of their investigational therapy fitusiran were recently published in The Lancet and The Lancet Haematology journals. Both phase 3 trials were evaluating the efficacy and safety of…