Federal Updates:
Washington Days Recap: Nearly 400 volunteer advocates attended Washington Days March 8-10th and participated in 235 meetings with Members of Congress and staff. The focus of this year…
Sanofi recently announced that results of two clinical studies of their investigational therapy fitusiran were recently published in The Lancet and The Lancet Haematology journals. Both phase 3 trials were evaluating the efficacy and safety of…
Coalition Advocates for Substance Use Disorder/Behavioral Health Services for Patients With Bleeding Disorders
This article was republished with permission by the UMASS Memorial Medical Center.
March marks Bleeding Disorder Awareness Month,…
Lentiviral Gene Therapy for Artemis-Deficient SCID
Speaker: Dr. Mort Cowan
NHF's Wednesday Webinars are a free education series open to providers and community members. Register to attend and learn about the…
For Immediate Release
Renee Peck
Pathway to Cures
rpeck@pathwaytocures.org
212-328-3790
New York, NY, February 27, 2023 – Pathway to Cures (P2C), a venture philanthropy fund focused on…
As NHF continues to celebrate it's 75th Anniversary, the organization sat down with community member Eldon Ham to learn more about his story.
Eldon: I'm Eldon Ham. I just turned 71 years old about a week or so ago…
Having everyone's perspectives is critical to forming solid research or a well-rounded program. But how do you get the perspectives of people who are not already be involved, whether by choice or circumstance? HASI Program Specialist, Marissa Melton…
Christopher J. Ambrosio of Lynbrook, New York, received the 2022 Kevin Child Scholarship. He was a senior at Chaminade High School in NY when he applied for the award and hoped to be accepted into a Physician Assistant program. He had already been…
Aiden Peterkin was a sophomore attending Centenary College of Louisiana when awarded the KCS in 2021. He was a biology Pre-Med major who had managed to achieve a 4.0 GPA in all his first-year college courses. Aiden stated that his goal is to…
Brian Duval of Golden Valley, MN was selected as the recipient of the 2020 Kevin Child Scholarship award. Brian was attending the University of Nebraska as a sophomore, with a focus on both finance and political science, when he received the KCS.…