Raising the Bar for Joint Health
Speaker(s): Dr. Annette von Drygalski
NHF's Wednesday Webinars are a free education series open to providers and community members. Register to attend and learn…
To end Bleeding Disorders Awareness Month and celebrate National Doctors Day, Dr. Aaron Chen shares his story of how living with thalassemia inspired his calling as a physician. Watch his interview or read the full transcript below.
…
Federal Updates:
Washington Days Recap: Nearly 400 volunteer advocates attended Washington Days March 8-10th and participated in 235 meetings with Members of Congress and staff. The focus of this year…
Sanofi recently announced that results of two clinical studies of their investigational therapy fitusiran were recently published in The Lancet and The Lancet Haematology journals. Both phase 3 trials were evaluating the efficacy and safety of…
Coalition Advocates for Substance Use Disorder/Behavioral Health Services for Patients With Bleeding Disorders
This article was republished with permission by the UMASS Memorial Medical Center.
March marks Bleeding Disorder Awareness Month,…
Lentiviral Gene Therapy for Artemis-Deficient SCID
Speaker: Dr. Mort Cowan
NHF's Wednesday Webinars are a free education series open to providers and community members. Register to attend and learn about the…
For Immediate Release
Renee Peck
Pathway to Cures
rpeck@pathwaytocures.org
212-328-3790
New York, NY, February 27, 2023 – Pathway to Cures (P2C), a venture philanthropy fund focused on…
As NHF continues to celebrate it's 75th Anniversary, the organization sat down with community member Eldon Ham to learn more about his story.
Eldon: I'm Eldon Ham. I just turned 71 years old about a week or so ago…