Novo Nordisk has notified the National Hemophilia Foundation that they have received a Complete Response Letter (CRL) from the U.S. Food and Drug Administration (FDA) for their investigational, subcutaneous therapy concizumab.
Concizumab …
Between 2013-2017, the “My Life Our Future” (MLOF) project offered eligible individuals with hemophilia free genotyping, which is historically hard to access, expensive, and not covered by insurance. Conducted through the laboratory analysis of a…
In July 2020 Ferring Pharmaceuticals suspended manufacturing of the nasal spray STIMATE®, a popular product used to treat certain bleeding disorders. The suspension, and subsequent pharmacy level recall, were in response to a packaging seal…
NHF’s Medical and Scientific Advisory Council (MASAC) recently issued four new documents, which are now available for easy access.Document 275 emphasizes the pivotal part physical therapy plays in the integrated…
We invite you to join the quarterly board of directors meeting for the National Hemophilia Foundation on May 18th starting at 7:00 pm ET. This meeting will discuss NHF business operations and decisions and is…
The Rare Diseases Diversity Coalition (RDDC) is currently seeking applicants for its 2023 Rare Disease Fellowship Program, which is aimed at inspiring the next generation of the medical workforce to work in the rare disease space and…
Every day, chapters across the country work with the blood and bleeding disorders community around them. Since 2021, Jacob Murdock has served as Chapter Executive Director in Nevada. He took time out of his busy schedule to tell us why loves the…
When Saylor Behrens' biology professor told her class that hemophilia is the result of incest, she grew angry. She knew better. Her younger brother, Wyatt, has hemophilia A.
It wasn't just the false narrative being spread that made her indignant…
Dear National Hemophilia Foundation Community, Staff and Friends,It is with mixed emotions that I want to inform you that I have decided to step down from my leadership position as President and CEO at the end of this year. Earlier this week, I…
Managing Pregnant Women with Hemophilia and von Willebrand Disease: How Do We Provide Optimum Care and Prevent Complications?
Speaker: Dr. Maissaa Janbain
NHF's Wednesday Webinars are a free education series open to providers…