Una conversación sobre la equidad sanitaria con Anthony Llanes Rodríguez
Abríl es el mes nacional de la salud de las minorías. Para aprender sobre las experiencias de la comunidad de trastornos hemorrágicas en un lugar hispanohablante, Chloe, un miembro del equipo de comunicación, habló con Anthony Llanes Rodríguez, el…
FDA Approves ALTUVIIIO™ for Hemophilia A Patients
The U.S. Food and Drug Administration (FDA) has approved ALTUVIIIO ™, formerly known as efanesoctocog alfa, for routine prophylaxis and on-demand treatment to control bleeding episodes, as well as perioperative management (surgery) for adults and…
NHF Public Policy February Monthly Update
During legislative session, NHF's chapter network, public policy staff, and the bleeding disorders community at large has been hard at work advocating across the United States! For the month of February, here are some advocacy and policy highlights…
uniQure Announces Published Trial Results for Approved Gene Therapy
uniQure recently announced publication of the clinical trial results associated with approval of the hemophilia gene therapy product Hemgenix®. The data, which were published in the New England Journal of Medicine, (NEJM), were drawn from the HOPE-B…
Global Perspectives on Prophylaxis
Global Perspectives on Prophylaxis Speaker(s): Dr. Joseph John NHF's Wednesday Webinars are a free education series open to providers and community members. Register to attend and learn about…
Gene Therapy in Hemophilia: Educating the Community on the Science to Aid in Conversation with Your Healthcare Team
Gene Therapy in Hemophilia: Educating the Community on the Science to Aid in Conversation with Your Healthcare Team Speaker(s): Betsy Koval, RN BSN - Patient Resource Navigator, CSL Behring NHF…
National Hemophilia Foundation Names Michael Recht, MD, PhD, MBA, as Chief Medical and Scientific Officer
FOR IMMEDIATE RELEASE MEDIA CONTACT: iostrin@hemophilia.org   NEW YORK, NY – The National Hemophilia Foundation (NHF), the leading advocacy and education organization for members of the inheritable…
Venture Philanthropy Fund to Accelerate the Development of Transformational Therapies and Technologies
FOR IMMEDIATE RELEASE Renee Peck Pathway to Cures rpeck@pathwaytocures.org 212-328-3790   National Hemophilia Foundation Launches “Pathway to Cures,” a Venture Philanthropy Fund to Accelerate the Development…
New Medscape Activity to Help Institutions Offer Gene Therapy
NHF is pleased to announce that its collaboration with Medscape continues with a new accredited educational activity designed to help healthcare providers fully incorporate gene therapy into the collaborative care model. “Integrated…
National Bleeding Disorders Foundation
The National Bleeding Disorders Foundation (formerly the National Hemophilia Foundation) is dedicated to finding cures for inheritable blood and bleeding disorders and to addressing and preventing the complications of these…