Important Changes Coming to Your State Medicaid or CHIP Program
[This content was shared for public use by the Centers for Medicare & Medicaid Services] Do you or a family member currently have health coverage through Medicaid or the Children’s Health Insurance Program (CHIP)? If so, you may soon need to…
Kopenitz family commits substantial funding to NHF health equity initiatives
This year, NHF celebrates its 75th anniversary. And in honor of this incredible milestone, NHF is welcoming a new era for the inheritable blood and bleeding disorders community by creating a more equitable future for all. This new moment in time…
Study Suggests Significant Rates of Depression and Anxiety for Individuals with VWD
While it is well understood that individuals with von Willebrand disease (VWD) will experience a variety bleeding episodes throughout their lifetime, the psychosocial impact of these symptoms has received relatively little inquiry. Greater knowledge…
Rare Disease Day
NHF is proud to participate in #RareDiseaseDay. This special day focuses on raising awareness and generating change for the millions of people across the world living with a rare disease, their families, and carers. Follow NHF on…
$75,000 in 75 Hours: 75th Anniversary Campaign
Let's raise $75,000 in 75 hours to celebrate BDC and NBDF's 75th anniversary!If you are at BDC, a minimum donation of $5 or more will earn you a custom made #BDC2023 friendship bracelet! Bring your donation receipt to the NBDF booth  in the…
APLUS Coalition Members Unite to Issue New Joint Statement
Washington, D.C. - The APLUS Coalition, an alliance of patient advocacy organizations, has announced a new joint statement in a show of solidarity for those living with conditions requiring the use of blood and/or plasma products. The statement…
Equitable Access to Behavioral Health Treatment for the Bleeding Disorders Community
Equitable Access to Behavioral Health Treatment for the Bleeding Disorders Community Speaker(s): Kate Reinhalter Bazinsky (she/her): Chair, Bleeding Disorders Substance Use & Mental Health Access Coalition…
National Research Blueprint: An Introduction
National Research Blueprint: An Introduction Speaker(s): NHF Research Team NHF's Wednesday Webinars are a free education series open to providers and community members. Register to attend and learn about the…
National Research Blueprint: A Continued Conversation
National Research Blueprint: A Continued Conversation Speaker(s): NHF Research Team NHF's Wednesday Webinars are a free education series open to providers and community members. Register to attend and learn…
A Conversation on Health Equity with Hawaii Chapter Interim Executive Director Kyra Calbero
April is National Minority Health Month. To learn about the experiences of the bleeding disorders community in an island state, Chloe, a member of the communications team, sat down with Kyra Calbero, Interim Executive Director of the foundation's…