What to Expect
What to expect before you start a trial Participating in a clinical trial can be a large commitment, so it’s important to know what to expect in advance. Depending on the goals of the trial, you might need to plan for more frequent visits to the…
Understanding Consent
What is the consent process?A clinical trial consent process uses a lengthy document called an informed consent form that explains everything you need to understand before deciding to sign up for a clinical trial. It will help you understand every…
NHF Responds to FDA's Proposed Blood Donation Changes
FOR IMMEDIATE RELEASE Contact: Ilana Ostrin 212-328-3769 Today, the United States Food and Drug Administration (FDA) announced proposed changes to blood donation policies that will likely take effect later this year. The policy…
Sanofi Announces New Efanesoctocog alfa Data Published in the NEJM
Sanofi recently announced newly published clinical trial data for efanesoctocog alfa, the company’s investigational recombinant factor VIII therapy (rFVIII) for the prevention of bleeding episodes in hemophilia A patients via once weekly…
WFH Gene Therapy Registry Goes Live
The World Federation of Hemophilia (WFH) has launched a new registry to help monitor the long-term safety and efficacy of hemophilia gene therapies in people with hemophilia across the globe. The Gene Therapy Registry (GTR), which is now live,…
What Happens in a Trial
Once you have completed your consent and the trial team has confirmed you are eligible to participate, you are ready to join the trial. The actual process will be different for each person, depending on where and how the trial is being conducted and…
When the Trial Ends
Clinical trials are designed with a rigorous timeline and process to collect information about a new intervention. Depending on the goals, your trial may take several months or several years. The expected duration of the trial is usually known at…
Other Ways to Participate in Research
There are many reasons why joining in a clinical trial may not be right for you. Maybe you are not eligible for currently available trials, or maybe right now life is just too busy to make time for all the requirements of a trial. That’s okay!…
Additional Resources
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Clinical Trials Essentials
Clinical trial essentials: What you need to know to be a part of the latest research.Many exciting new medicines, devices and procedures have helped improve care for people with bleeding disorders. These advances have been possible because of new…