Spark Announces SPK-8011 Updates at ASH
Spark has announced updated multi-year results from its phase 1/2 clinical trial of SPK-8011, the company’s investigational gene therapy for hemophilia A. The results were presented at the recently concluded 64th American Society of Hematology…
inSourceRX Prescription Savings
inSourceRX Prescription Savings Speaker(s): Jim Christensen & Maureen Parsons NHF's Wednesday Webinars are a free education series open to providers and community members. Register to attend and learn…
Interindividual variability in transgene mRNA and protein production following adeno-associated virus gene therapy for hemophilia A
Interindividual variability in transgene mRNA and protein production following adeno-associated virus gene therapy for hemophilia A Speaker(s): Sylvia Fong NHF's Wednesday Webinars are a free education series…
Identification of Chemical and Genetic Modifiers of Bleeding Disorders Using a Zebrafish Model System
VWD Guidelines: Second Anniversary Update
VWD Guidelines: Second Anniversary Update Speaker(s): Lena Volland and Nikole Scappe NHF's Wednesday Webinars are a free education series open to providers and community members. Register to attend and learn…
NHF's Own Your Path program begins recruitment
Recruitment is now open for Own Your Path- a program for young adult males with hemophilia who are currently in the transition years between 18-29. We know that maintaining adherence to a prophy regimen can have short and long -term health benefits…
Own You Path Program Registration Closes
Recruitment is now open for Own Your Path- a program for young adult males with hemophilia who are currently in the transition years between 18-29. We know that maintaining adherence to a prophy regimen can have short and long -term health benefits…
Register to Run the NYC Half Marathon
 It’s time to lace up your running shoes! NHF is participating in the 2023 United Airlines NYC Half Marathon on Sunday, March 19, 2023. Team NHF will run 13 miles, from Brooklyn to Manhattan, raising funds and awareness for the inheritable…
Anti-fibrinolytic Strategies to Decrease Bleeding in Hemophilic Arthropathy
Dr. von Drygalski's research focuses on better understanding the mechanisms operating the anti-fibrinolytic system and how this process works in patients with hemophilia and specifically with joint bleeding. Accelerated fibrinolysis and clot…
NHF Assumes Leadership of the American Plasma Users Coalition
FOR IMMEDIATE RELEASE Ilana Ostrin Senior Director of Public Relations and Communications iostrin@hemophilia.org 212-328-3769 NHF Assumes Leadership of the American Plasma Users Coalition The organization’s…