NBDF has numerous publications, brochures and tools available here for download or if available print versions can be ordered through Brainstorm Print, our printing and shipping partner, via the NBDF Portal. These engaging resources span across different bleeding disorders and can be used for patients and families, or sharing with schools, workplaces and extended family members and friends.
NBDF encourages redistribution of its publications for educational purposes by other nonprofit bleeding disorders organizations. NBDF produced materials, either printed publications or website content, cannot be translated or reproduced in whole or in part without prior written permission from NBDF.
NOTE: Some of these materials were created prior to the organization's rebrand from the National Hemophilia Foundation to the National Bleeding Disorders Foundation. Though some items may reflect NHF branding, they are likely still relevant. For questions on any specific materials, email info@bleeding.org.
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HANDI Highlights - Student Financial Resources
HANDI Highlights is a periodic communication linking the inherited bleeding disorders community to resources that reflect information request trends of the HANDI Resource Center. This month we are highlighting financial resources for students living with inheritable bleeding disorders and/or their family members pursuing post-secondary education.
HANDI Highlights - Introductory Resources
HANDI Highlights is a periodic communication linking the inherited bleeding disorders community to resources that reflect information request trends of the HANDI Resource Center. We are celebrating Bleeding Disorders Awareness Month by highlighting introductory resources for those that are new to our inherited bleeding disorder community.
Hemophilia Fact Sheet
The Hemophilia Fact Sheet is a two-page document that can be used as a resource to educate individuals/family members new to hemophilia, personnel at schools/childcare settings, and the general public through outreach efforts.
Lista de recursos de salud mental
Esta lista está dirigida a personas y familias afectadas por trastornos hemorrágicos que estén interesadas en explorar apoyo y recursos de salud mental.
Linea directa para crisis de salud mental
Esta lista es para personas y familias afectadas por trastornos hemorrágicos que se encuentren en crisis. Las personas que experimenten una situación que ponga en peligro su vida o tengan pensamientos de autolesionarse o hacer daño a otros deben buscar ayuda inmediata llamando al 9-1-1 o acudiendo al servicio de urgencias más cercano.
Working for Success
Our comprehensive guide delves into the importance of finding harmony between your physical abilities and the job requirements. Explore practical insights and strategies to ensure your career success while safeguarding your physical well-being.
Folleto sobre el Factor V (F5)
El factor V es un trastorno hemorrágico muy poco frecuente. Este folleto se creó para ayudar a las personas a conocer como ser diagnosticado con la deficiencia de factor V (F5) y proporcionar información sobre los síntomas, las opciones de tratamiento y los recursos. Esta publicación era desarrollada gracias al apoyo de los patrocinadores del Programa de Educación Comunitaria 2022 de la NHF: BioMarin, Genentech, Hemophilia Alliance, Sangamo, Sanofi Genzyme y Takeda.
Deficiencia del depósito de plaquetas (PSPD)
La deficiencia del pool de almacenamiento de plaquetas es el nombre que se da a varios trastornos hemorrágicos raros causados por una deficiencia en los gránulos de las plaquetas. Este folleto se ha creado para ayudar a las personas a conocer como ser diagnosticado con la Deficiencia del Depósito de Plaquetas (PSPD) y proporcionar información sobre los síntomas, las opciones de tratamiento y los recursos. Esta publicación era desarrollada gracias al apoyo de los patrocinadores del Programa de Educación Comunitaria 2022 de la NHF: BioMarin, Genentech, Hemophilia Alliance, Sangamo, Sanofi Genzyme y Takeda.
VWD Toolkit for Men, Boys, and Individuals without the Potential to Menstruate
In this toolkit you will find many resources, which can be helpful in your VWD journey. Since everyone’s experiences are slightly different, you may not need all the resources included. However, be sure to read through the entire toolkit and use what can be applied to your individual situation. A full list of the included publications can be found under “Key of Resources”.
VWD Toolkit for Women, Girls, and Individuals with the Potential to Menstruate
In this toolkit you will find many resources, which can be helpful in your VWD journey. Since everyone’s experiences are slightly different, you may not need all the resources included. However, be sure to read through the entire toolkit and use what can be applied to your individual situation. A full list of the included publications can be found under “Key of Resources”
Platelet Storage Pool Deficiency (PSPD)
Platelet Storage Pool Deficiency is the name given to several rare bleeding disorders caused by a deficiency in platelet granules. This booklet was created to help individuals learn about how Platelet Storage Pool Deficiency (PSPD) is diagnosed and provide information about symptoms, treatment options, and resources. This publication was developed through the support of NHF’s 2022 Community Education Program sponsors: BioMarin, Genentech, Hemophilia Alliance, Sangamo, Sanofi Genzyme, and Takeda.
Factor V (F5) Booklet
Factor V is an ultra-rare bleeding disorder. This booklet was created to help individuals learn about how Factor V (F5) Deficiency is diagnosed and provide information about symptoms, treatment options, and resources. This publication was developed through the support of NHF’s 2022 Community Education Program sponsors: BioMarin, Genentech, Hemophilia Alliance, Sangamo, Sanofi Genzyme, and Takeda.
Directrices parael tratamiento de la Hemofilia y otros trastornos Hemorrágicos en los servicios de Urgencias
Una visita al departamento de emergencias puede ser aterradora y estresante. Conocido por las siglas en Ingles: MASAC For You (Directrices parael tratamiento de la Hemofilia y otros trastornos Hemorrágicos en los servicios de Urgencias) ofrece pasos para ayudarle a prepararse para una visita al departamento de emergencias y incluye información importante para ayudarle a mantener conversaciones productivas con el personal del departamento de emergencias. El documento proporciona directrices de tratamiento de alto nivel que los pacientes pueden compartir con los proveedores y incluye enlaces a otras directrices de MASAC que ofrecen información más detallada sobre trastornos hemorrágicos específicos y sus poblaciones de pacientes.
MASAC For You - Recommendations for Emergency Department Management of Hemophilia and Other Bleeding Disorders
A trip to the Emergency Department (ED) can be scary and stressful. MASAC For You – Recommendations for Emergency Department Management of Hemophilia and Other Bleeding Disorders, provides steps to help you prepare for an emergency department visit and includes important information to help navigate productive conversations with emergency department staff. The document provides high-level treatment guidelines that patients can share with providers and includes links to other MASAC guidelines that deliver more detailed information on specific bleeding disorders and their patient populations.