NBDF has numerous publications, brochures and tools available here for download or if available print versions can be ordered through Brainstorm Print, our printing and shipping partner, via the NBDF Portal. These engaging resources span across different bleeding disorders and can be used for patients and families, or sharing with schools, workplaces and extended family members and friends.
NBDF encourages redistribution of its publications for educational purposes by other nonprofit bleeding disorders organizations. NBDF produced materials, either printed publications or website content, cannot be translated or reproduced in whole or in part without prior written permission from NBDF.
NOTE: Some of these materials were created prior to the organization's rebrand from the National Hemophilia Foundation to the National Bleeding Disorders Foundation. Though some items may reflect NHF branding, they are likely still relevant. For questions on any specific materials, email info@bleeding.org.
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Glanzmann’s Thrombasthenia (GT) Booklet
Glanzmann’s Thrombasthenia an ultra-rare bleeding disorder. This booklet was created to help individuals learn about how Glanzmann’s Thrombasthenia (GT) is diagnosed and provide information about symptoms, treatment options, and resources. This publication was developed through the support of NHF’s 2021 Community Education Program sponsors: BioMarin, Genentech, Hemophilia Alliance, Sangamo, Sanofi Genzyme, and Takeda.
Super Seven - A Story for Rares
Twelve‐year‐old Tanner has a rare bleeding disorder and sometimes feels like no one understands what he’s going through. Does this sound like you? We’ve created Super Seven: A Story for Rares, a book about a kid with a rare bleeding disorder for children with very rare bleeding disorders. Super Seven is targeted to middle school readers, kids roughly between the ages of 8 and 12, but everyone is welcome to read the book.
Super Seven - Discussion Guide
This discussion guide is for parents and caregivers to help generate conversation about some of the themes of the book Super Seven, including sports, disclosing your bleeding disorder, and school issues. We encourage parents and caregivers to read both the book and the guide before having a discussion.
Let's Talk Puberty: A Guide for Girls with Bleeding Disorders – Tips for Parents & Caregivers
This companion piece to Time to Talk Puberty discusses tips for parents and caregivers for discussing puberty with young person in their life including conversation pointers, and questions to ask.
Menstrual Chart and Scoring System
This form tracks the menstrual flow according to saturation with tampons or pads.
What Women and Girls Should Know About Getting Tested For Bleeding Symptoms
This brochure is a guide to bleeding disorder lab tests, screening tools, and health exams. A comprehensive glossary of terminology is included.
Guidelines for Growing: An action plan for parents of children with bleeding disorders ( Ages 5-8)
A component of the National Hemophilia Foundation’s (NHF’s) Steps for Living Program, funded in part by the Centers for Disease Control and Prevention, is Guidelines for Growing, a series of age-specific brochures (targeting ages 0-4, 5-8, 9-12, 13-15, and 16-18) adapted from the NHF’s Medical and Scientific Advisory Council (MASAC). Each brochure focuses on social and developmental milestones specific to the general age range of a child or young person with a bleeding disorder. This resource is designed to be used in conjunction with the HTC provider team to guide the parent or young person through transitional periods.
BYK Teen Girls Brochure
A brochure for teens that covers puberty, body changes, periods, and bleeding disorders, and includes a glossary of terminology.
Doctor Visit Preparation Guide
A checklist of questions to help you be prepared when visiting your provider.
Healthcare Diary
A list of questions for you to review a month or two before your health care provider visit.