NBDF has numerous publications, brochures and tools available here for download or if available print versions can be ordered through Brainstorm Print, our printing and shipping partner, via the NBDF Portal. These engaging resources span across different bleeding disorders and can be used for patients and families, or sharing with schools, workplaces and extended family members and friends.
NBDF encourages redistribution of its publications for educational purposes by other nonprofit bleeding disorders organizations. NBDF produced materials, either printed publications or website content, cannot be translated or reproduced in whole or in part without prior written permission from NBDF.
NOTE: Some of these materials were created prior to the organization's rebrand from the National Hemophilia Foundation to the National Bleeding Disorders Foundation. Though some items may reflect NHF branding, they are likely still relevant. For questions on any specific materials, email info@bleeding.org.
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BYK Teen Girls Brochure
A brochure for teens that covers puberty, body changes, periods, and bleeding disorders, and includes a glossary of terminology.
Guidelines for Growing: An action plan for teens with bleeding disorders (Ages 16-18)
A component of the National Hemophilia Foundation’s (NHF’s) Steps for Living Program, funded in part by the Centers for Disease Control and Prevention, is Guidelines for Growing, a series of age-specific brochures (targeting ages 0-4, 5-8, 9-12, 13-15, and 16-18) adapted from the NHF’s Medical and Scientific Advisory Council (MASAC). Each brochure focuses on social and developmental milestones specific to the general age range of a child or young person with a bleeding disorder. This resource is designed to be used in conjunction with the HTC provider team to guide the parent or young person through transitional periods.
Guidelines for Growing: An action plan for teens with bleeding disorders ( Ages 13-15)
A component of the National Hemophilia Foundation’s (NHF’s) Steps for Living Program, funded in part by the Centers for Disease Control and Prevention, is Guidelines for Growing, a series of age-specific brochures (targeting ages 0-4, 5-8, 9-12, 13-15, and 16-18) adapted from the NHF’s Medical and Scientific Advisory Council (MASAC). Each brochure focuses on social and developmental milestones specific to the general age range of a child or young person with a bleeding disorder. This resource is designed to be used in conjunction with the HTC provider team to guide the parent or young person through transitional periods.
Guidelines for Growing: An action plan for parents of children with bleeding disorders (Ages Birth-4)
A component of the National Hemophilia Foundation’s (NHF’s) Steps for Living Program, funded in part by the Centers for Disease Control and Prevention, is Guidelines for Growing, a series of age-specific brochures (targeting ages 0-4, 5-8, 9-12, 13-15, and 16-18) adapted from the NHF’s Medical and Scientific Advisory Council (MASAC). Each brochure focuses on social and developmental milestones specific to the general age range of a child or young person with a bleeding disorder. This resource is designed to be used in conjunction with the HTC provider team to guide the parent or young person through transitional periods.
Guidelines for Growing: An action plan for parents of children with bleeding disorders ( Ages 9-12)
A component of the National Hemophilia Foundation’s (NHF’s) Steps for Living Program, funded in part by the Centers for Disease Control and Prevention, is Guidelines for Growing, a series of age-specific brochures (targeting ages 0-4, 5-8, 9-12, 13-15, and 16-18) adapted from the NHF’s Medical and Scientific Advisory Council (MASAC). Each brochure focuses on social and developmental milestones specific to the general age range of a child or young person with a bleeding disorder. This resource is designed to be used in conjunction with the HTC provider team to guide the parent or young person through transitional periods.
Nosebleeds (Spanish)
Created in collaboration with NHF's Nursing Working Group and nurses from Canada, this publication describes the unique issues a person with a bleeding disorder faces with a nosebleed. Causes of nosebleeds, basic treatment, when to consult the bleeding disorder treatment center and prevention issues are discussed.
Better You Know Síntomas 1
Esta postal puede utilizarse para concienciar sobre los trastornos hemorrágicos, especialmente a quienes no están diagnosticados.
The Child with a Bleeding Disorder: First Aid for School Personnel
A publication aimed at school nurses and teachers who have a student with a bleeding disorder. Descriptions of typical injuries and other incidences when bleeding occurs are discussed with proper steps that need to be followed as well as standard precautions and medications (bulk copies only available in Spanish).
Family Emergency Kit Checklist
The checklist includes tips for creating a family emergency plan that addresses both universal needs and special considerations for those affected by a bleeding disorder.
No Deje Pasar los Signos
Este folleto informa a los médicos de atención primaria sobre los signos y los pasos a seguir para el diagnóstico.
Better You Know Síntomas 2
Esta postal puede utilizarse para concienciar sobre los trastornos hemorrágicos, especialmente a quienes no están diagnosticados.
The Child with a Bleeding Disorder: First Aid for School Personnel (Spanish)
A publication aimed at school nurses and teachers who have a student with a bleeding disorder. Descriptions of typical injuries and other incidences when bleeding occurs are discussed with proper steps that need to be followed as well as standard precautions and medications (bulk copies only available in Spanish).
Playing it Safe: Bleeding Disorders, Sports and Exercise (Spanish)
Este folleto educativo describe la importancia de la actividad física para la salud de las articulaciones y el bienestar general de las personas que viven con trastornos hemorrágicos. Proporciona una visión general de varios deportes y actividades para todas las etapas de la vida y aborda cómo participar en la actividad física con seguridad.