NBDF has numerous publications, brochures and tools available here for download or if available print versions can be ordered through Brainstorm Print, our printing and shipping partner, via the NBDF Portal. These engaging resources span across different bleeding disorders and can be used for patients and families, or sharing with schools, workplaces and extended family members and friends.
NBDF encourages redistribution of its publications for educational purposes by other nonprofit bleeding disorders organizations. NBDF produced materials, either printed publications or website content, cannot be translated or reproduced in whole or in part without prior written permission from NBDF.
NOTE: Some of these materials were created prior to the organization's rebrand from the National Hemophilia Foundation to the National Bleeding Disorders Foundation. Though some items may reflect NHF branding, they are likely still relevant. For questions on any specific materials, email info@bleeding.org.
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Lab Test Log
This form helps you to track what tests were ordered by a health care provider, when tests were given, and the test results.
Guidelines for Growing: An action plan for parents of children with bleeding disorders (Ages Birth-4)
A component of the National Hemophilia Foundation’s (NHF’s) Steps for Living Program, funded in part by the Centers for Disease Control and Prevention, is Guidelines for Growing, a series of age-specific brochures (targeting ages 0-4, 5-8, 9-12, 13-15, and 16-18) adapted from the NHF’s Medical and Scientific Advisory Council (MASAC). Each brochure focuses on social and developmental milestones specific to the general age range of a child or young person with a bleeding disorder. This resource is designed to be used in conjunction with the HTC provider team to guide the parent or young person through transitional periods.
Guidelines for Growing: An action plan for parents of children with bleeding disorders ( Ages 9-12)
A component of the National Hemophilia Foundation’s (NHF’s) Steps for Living Program, funded in part by the Centers for Disease Control and Prevention, is Guidelines for Growing, a series of age-specific brochures (targeting ages 0-4, 5-8, 9-12, 13-15, and 16-18) adapted from the NHF’s Medical and Scientific Advisory Council (MASAC). Each brochure focuses on social and developmental milestones specific to the general age range of a child or young person with a bleeding disorder. This resource is designed to be used in conjunction with the HTC provider team to guide the parent or young person through transitional periods.
Guidelines for Growing: An action plan for teens with bleeding disorders (Ages 16-18)
A component of the National Hemophilia Foundation’s (NHF’s) Steps for Living Program, funded in part by the Centers for Disease Control and Prevention, is Guidelines for Growing, a series of age-specific brochures (targeting ages 0-4, 5-8, 9-12, 13-15, and 16-18) adapted from the NHF’s Medical and Scientific Advisory Council (MASAC). Each brochure focuses on social and developmental milestones specific to the general age range of a child or young person with a bleeding disorder. This resource is designed to be used in conjunction with the HTC provider team to guide the parent or young person through transitional periods.
Guidelines for Growing: An action plan for teens with bleeding disorders ( Ages 13-15)
A component of the National Hemophilia Foundation’s (NHF’s) Steps for Living Program, funded in part by the Centers for Disease Control and Prevention, is Guidelines for Growing, a series of age-specific brochures (targeting ages 0-4, 5-8, 9-12, 13-15, and 16-18) adapted from the NHF’s Medical and Scientific Advisory Council (MASAC). Each brochure focuses on social and developmental milestones specific to the general age range of a child or young person with a bleeding disorder. This resource is designed to be used in conjunction with the HTC provider team to guide the parent or young person through transitional periods.
Preparación para la Visita Médica
Lista de preguntas que los consumidores deben tener en cuenta antes (uno o dos meses) de una visita al médico.
Diario de Atención Médica
Lista de preguntas que los consumidores deben tener en cuenta antes (uno o dos meses) de una visita al médico.
What is Mild Hemophilia?
Written in a straightforward and accessible style, this brochure is designed to help educate young readers about the mechanisms behind coagulation, prolonged bleeding and inheritance. It provides information on common myths, tips on prevention and basic treatment options.
Mental Health Hotlines
This list is for individuals and families affected by bleeding disorders who are in crisis. Individuals experiencing a life-threatening situation or having thoughts of self-harm or harming others should seek immediate assistance by calling 9-1-1 or going to the nearest emergency department.
Better You Know Signs and Symptoms 2
This postcard can be used to raise awareness about bleeding disorders, especially for those that are undiagnosed.
Role of New Prolonged Half-Life Clotting Factors in Hemophilia
“Role of New Prolonged Half-Life Clotting Factors in Hemophilia,” which was developed independently by an NHF working group, includes a basic explanation of the differences between these newer products and traditional factor therapies, and the treatment choice implications for consumers. It also provides a description and helpful graphic representation of factor half-life.
Registro de Pruebas de Laboratorio
Este formulario registra las pruebas solicitadas por un profesional sanitario, cuándo se realizaron y los resultados de las mismas.