Employee

Philip M. Gattone, M.Ed., is the President and Chief Executive Officer of the National Bleeding Disorders Foundation.

Matthew Hartnett, BS, MPH, is the Community Network Research Manager for the NBDF, where he focuses on Community Voices in Research (CVR), a community-powered registry for the bleeding disorders community. Matt obtained his undergraduate degree in human physiology from Boston University and a Master of Public Health from George Washington University. Matt is committed to bridging the gap between research and the lived experiences of the bleeding disorders community.

Naomi Miller is the Marketing Advertising Project Specialist III at the National Bleeding Disorders Foundation, where she supports marketing, advertising, and sponsored media initiatives to advance NBDF’s mission. She specializes in project coordination, cross-functional collaboration, and ensuring campaigns and partnerships are executed accurately and on schedule.

Matt Delaney joined NBDF in 2022 as Government Relations Manager, where he assists NBDF chapters in advocacy and policy, and contributes to the foundation’s federal and international work on blood and product safety and supply. As a person who lives with von Willebrand disease (VWD), Matt brings his personal expertise as a community advocate for himself and his family to the role.  Community advocacy led Matt to pursue a career in public service, and he gained valuable advocacy experience through NBDF’s National Youth Leadership Program.

Peter Harvey serves as the Chief Business Officer for NBDF including oversight for finance & accounting, business development, conference & travel services, and IT. Peter also serves as the Chief Financial Officer for Pathway to Cures (P2C), NBDF’s Venture Philanthropy Fund fueling innovation in the treatment of inheritable blood and bleeding disorders.

Bill Robie is the Senior Director of State Government Relations for the National Bleeding Disorders Foundation and is responsible for overseeing NBDF’s state policy work. Bill works on key issues affecting access to health care for the bleeding disorders community including patient out of pocket expenses, step therapy and other utilization management practices, Medicaid prescription drug management, patient protections in the Affordable Care Act, and pharmacy benefit manager reform.

Maria E. Santaella, PhD(c), MSN, RN-BC, CPHON®, serves as Senior Vice President of Research Strategy at the National Bleeding Disorders Foundation, where she leads the organization’s research agenda and drives collaboration among lived experience experts (LEEs), researchers, and other key stakeholders. She oversees key national initiatives, including the Bleeding Disorders Research Collaborative, the research grants program, and Community Voices in Research (CVR), a community-driven registry that captures longitudinal lived experiences.

Dawn has been a leader in the bleeding disorders community for many years.  As a parent of a son with hemophilia, she founded the Rocky Mountain Hemophilia & Bleeding Disorders Association in Bozeman, Montana, served as its Executive Director, and began their Family Camp. After moving to Pittsburgh, Pennsylvania, Dawn worked for the American Diabetes Association (ADA) as an Area Manager. Concurrently, she served as a board member for the Hemophilia Center of Western Pennsylvania for six years.