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Who We Are
Our Story
Mission & History
What We Do
What Do We Value?
Health Access
NBDF Reports
Financial Statements
Media Newsroom
Educate to Elevate
The National Hemophilia Foundation Has a New Name
The Red Thread: 75th Anniversary Celebration
Our Team
Staff
Board of Directors
MASAC
Meet the NYLI
Nursing Working Group
Physical Therapy Working Group
Social Work Working Group
LEE Research Advisory Council
Our Partners
Partners In Progress
The ACT Initiative
Red Tie Society
CDC Coop Agreement
Pathway to Cures
Careers
What Do We Value?
Career Opportunities
Volunteer Opportunities
Bleeding Disorders A-Z
Overview
Fast Facts
What is a Bleeding Disorder?
History
Types of Bleeds
Inhibitors
Women and Bleeding Disorders
Types
Hemophilia A
Hemophilia B
Von Willebrand Disease
Other Factor Deficiencies
Inherited Platelet Disorders
Treatment
Comprehensive Medical Care
MASAC For You
Treatment Guidelines (MASAC)
Current Treatments
Innovative Therapies
Clinical Trials
Shared Decision-Making
Hemophilia Treatment Centers
Healthcare Coverage
Choosing an Insurance Plan
Private Insurance
Public Insurance
Health Insurance Toolkit
Educational Programs
Education
Bleeding Disorders Conference
Inhibitor Education
Steps for Living
Online Education
Rare Bleeding Disorders
Von Willebrand Disease
Mental Health
Gene and Innovative Therapies
Women
Educational Programming
Clotting Cascade
Training
Youth Leadership (NYLI)
Outreach
THRIVE
THRIVE - en español
Undiagnosed
Guías Culturales
Advocacy
Federal Priorities
Access to Care
Federal Programs
Medicare
Medicaid
Blood & Blood Product Safety
Make All Copays Count
State Priorities
Utilization Management
Patient Out-of-Pocket Expenses
Medicaid
How You Can Take Action
Voices for Policy Change!
Washington Days
Advocacy Do’s and Don’ts
6 Steps for Grassroots Advocacy
Tell Your Story
Managed Care & Payers
Collaborating on Coverage
Quality of Care Guidelines
CME/CE Webcast Series
Educational Web Portal
Quality Improvement & Cost Management
Research
Research Projects
Foundation Research
Funded by Foundation
Presented at Our Conference
Research Journal Club
Research Roundtable
Clinical Trial Essentials
coreHem Mental Health Tool
Fund Your Research
Judith Graham Pool Postdoctoral Research Fellowship
NBDF-Sanofi Career Development Award
Nursing Excellence Fellowship
Physical Therapy Excellence Fellowship
Social Work Excellence Fellowship
Community Voices in Research
What is CVR?
How & Why Should I Participate?
Impact on Research
Frequently Asked Questions
Login to CVR
Bleeding Disorders Research Collaborative
What is the Bleeding Disorders Research Collaborative?
The BDRC Structure and Research Priorities
Lived Experience Experts (LEEs) Leading the Way
How to Get Involved
Our Journey Together
BDRC Resources
Healthcare Professionals
Guidelines on Care
Comprehensive Care
MASAC Documents
MASAC Minutes
Products Licensed (US)
Emergency Management
Snapshots of VWD Guidelines
Education & Resources
NBDF-Takeda Clinical Fellowship Program
NBDF’s Collaborative Learning Exchange
Online Education for Providers
Live & Online Learning (Partners Program)
Rare Coagulation Disorders Resource Room
Peer-reviewed Journals
NBDF Publications
Other Associations
Allied Healthcare
Nursing
Physical Therapy
Social Work
Other Interdisciplinary Healthcare Providers
Community Resources
Request Information
Contact Us
The Neil Frick Resource Center
Read Our Publications
Subscribe for Email Updates
Get HemAware Magazine
Newsletter Archive
Wednesday Webinar Series
Resources Near You
Chapters
Hemophilia Treatment Centers
Clinical Trials
Bleeding Disorders Camps
Community Voices in Research
Financial Assistance
Scholarships
Patient Assistance Programs
Make a Difference
Donate
Donate Now
Donor Advised Funds
Donate Securities or Cryptocurrency
Give Monthly
Planned Giving
Join Us
Become a Corporate Partner
Bleeding Disorders Awareness Month
Find a Walk
Participate in Research/CVR
Why Give?
More than a Donation
Create Your Own Fundraiser
Fundraise on Social Media
Run in a Marathon
Matching Gifts
Give
Subscribe
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Johanna Ong
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Johanna Ong
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