Transgender Health and the Bleeding Disorders Community: An Interview with Mason Bobro
New Study Looks at Hemophilia Survival Rate Disparities
Inequities in Thrombosis and Hemostasis Lab Testing the Focus of Illustrated Review
Rare Disease Fellowship Program Now Accepting Applications!
Start the Conversation: How to Engage Unengaged Communities
A Conversation on Health Equity with Hawaii Chapter Interim Executive Director Kyra Calbero
Una conversación sobre la equidad sanitaria con Anthony Llanes Rodríguez
Make Sure Research Findings Include You
Research generates the evidence needed to improve treatment, care, and quality of life. Come and find out how to make sure research findings are representative and useful, and why it matters.
Getting to 2030 Blue Sky Vision: A Community Conversation
In the past few years, NBDF has shared its vision for 2030 and started to work alongside the community to get there. Join us for a panel discussion and community conversation about the progress to date and what else NBDF needs to consider as it forges ahead in partnership aiming for the best care possible for the inheritable blood disorders community by 2030.
Starting the Conversation with Dr. Johnny Mahlangu
Dr. Johnny Mahlangu graciously sat down with NHF's CEO Dr. Len Valentino for an informative dialogue to honor Black History Month and World Hemophilia Day. Read these Q&As and watch the video to learn more!
Intersections: Latino/x Communities
NBDF provides free quality education on issues that matter to the bleeding disorders community. This video is on intersections: latinox communities
Intersections: Black Communities and Their Voices
NBDF provides free quality education on issues that matter to the bleeding disorders community. This video is on intersections: black communities and their voices
Intersections: Muslim Cultures & Bleeding Disorders
NBDF provides free quality education on issues that matter to the bleeding disorders community. This video is on intersections: muslim cultures bleeding disorders
Embracing Cultural Confidence™ in the Face of Anti-Asian Racism
NBD provides free quality education on issues that matter to the bleeding disorders community. This video is on intersections embracing cultural
NHF Announces Jeanne Marie Lusher (JML) Diversity Fellowship Recipients
NHF Responds to New CMS Guidance
Media Contact:
Brett Spitale, VP of Advancement
bspitale@hemophilia.org
646-784-0368
COVID-19 Exacerbates Treatment Affordability Challenges & Health Inequities
The National Hemophilia Foundation (NHF) today, in conjunction with the American Kidney Fund (AKF), Art
A Message from NHF President and CEO
Asian & Pacific Islander Cultures & Bleeding Disorders
Western Asia/Muslim Culture & Bleeding Disorders
This session will examine the intersection between Western Asian/Muslim culture and life with a bleeding disorder. We will discuss challenges and successes confronting generational issues, acceptance, and cultural nuances. The session will close with audience discussion on how to enhance engagement within this community. No industry representatives will be allowed in this session.
Faith and Bleeding Disorders
Letter to the Community
New Vice President of Health Equity, Diversity and Inclusion Joins NHF
30th Anniversary of the Ryan White CARE Act
Insights from African American communities with bleeding disorders
This session will present findings from a national needs assessment conducted by NBDF in partnership with the CDC about the experiences and needs of people with bleeding disorders within African American communities. The group will discuss implications for individuals, chapters, and partners to serve African American communities.