In a significant advancement for von Willebrand Disease (VWD) research and treatment, an international team of experts, including patients, clinicians, and researchers, has developed the first-ever core outcome set (COS) for VWD clinical trials.
Research generates the evidence needed to improve treatment, care, and quality of life. Come and find out how to make sure research findings are representative and useful, and why it matters.
In the past few years, NBDF has shared its vision for 2030 and started to work alongside the community to get there. Join us for a panel discussion and community conversation about the progress to date and what else NBDF needs to consider as it forges ahead in partnership aiming for the best care possible for the inheritable blood disorders community by 2030.
Dr. Johnny Mahlangu graciously sat down with NHF's CEO Dr. Len Valentino for an informative dialogue to honor Black History Month and World Hemophilia Day. Read these Q&As and watch the video to learn more!
NBDF provides free quality education on issues that matter to the bleeding disorders community. This video is on intersections: latinox communities
NBDF provides free quality education on issues that matter to the bleeding disorders community. This video is on intersections: black communities and their voices
NBDF provides free quality education on issues that matter to the bleeding disorders community. This video is on intersections: muslim cultures bleeding disorders
NBD provides free quality education on issues that matter to the bleeding disorders community. This video is on intersections embracing cultural
Media Contact:
Brett Spitale, VP of Advancement
bspitale@hemophilia.org
646-784-0368
The National Hemophilia Foundation (NHF) today, in conjunction with the American Kidney Fund (AKF), Art
This session will examine the intersection between Western Asian/Muslim culture and life with a bleeding disorder. We will discuss challenges and successes confronting generational issues, acceptance, and cultural nuances. The session will close with audience discussion on how to enhance engagement within this community. No industry representatives will be allowed in this session.
This session will present findings from a national needs assessment conducted by NBDF in partnership with the CDC about the experiences and needs of people with bleeding disorders within African American communities. The group will discuss implications for individuals, chapters, and partners to serve African American communities.
