The latest Resource Roundup (RR) is dedicated to women, girls, and people with the propensity to menstruate (WGPPM), all historically underserved groups within the inherited bleeding disorders community. While recognition of these populations and their struggles to achieve healthy equity has increased recently, affected individuals continue to face challenges when it comes to timely diagnosis and management.
For those new to the RR, it is a monthly communication of the Neil Frick Resource Center (NFRC) designed to connect the bleeding disorders community with practical and readily accessible resources. The NFRC provides valuable information and support for individuals with inheritable bleeding disorders, their families, and healthcare professionals. Find resources, connect with the community, and access vital information about treatment centers, support groups, and more.
Access this edition of the RR for information relevant to bleeding symptom recognition, screening, and treatment for WGPPM. Included are videos, articles, fact sheets, and medical recommendations covering a variety of subtopics, including diagnostic challenges, bone and mental health, age-specific consideration for WGPPM, and personal experiences of affected women and girls.
