Atrial Fibrillation in People with Hemophilia: a Cross-Sectional Evaluation in Europe by the ADVANCE Working Group
Objective: With increasing life expectancy of people with hemophilia (PWH) in developed countries, the number of PWH affected with age-related diseases is also increasing. Atrial fibrillation is a common health problem in the…
Relationship of quality of life, pain, and self-reported arthritis with age, employment, bleed rate, and utilization of hemophilia treatment center and healthcare provider services: US results from adult patients with hemophilia in the HERO study
Objective: Examine potential relationships between health-related quality of life (QoL), pain interference and self-reported arthritis and age, employment, activity, bleed frequency, and hemophilia treatment center (HTC) and…
Outcomes of Total Knee and Hip Arthroplasty for Hemophilic Arthropathy
Objective: To assess subjective and objective outcomes of total joint arthroplasty (TJA) as a treatment for hemophilic arthropathy, and to assess the safety and efficacy of perioperative pharmacologic thromboprophylaxis as a…
A Phase I Study of Safety and Pharmacokinetics of BAX 855, a Longer Acting PEGylated Full-Length Recombinant Factor VIII (PEG-rFVIII), in Patients with Severe Hemophilia A
The PROLONG-ATE Study: A Phase 2/3 Study to Evaluate Efficacy and Safety of BAX 855,A Longer-Acting PEGylated Full-Length Recombinant Factor VIII (PEG-rFVIII),for Prophylaxis and Treatment of Bleeding in Severe Haemophilia A
FEIBA PROOF: A Prospective, open-label, randomized, parallel study with FEIBA NF to evaluate the efficacy and safety of prophylactic versus on-demand treatment in haemophilia A or B subjects with inhibitors
Patient, Caregiver, and Nurse Satisfaction with BAXJECT III, a Next-Generation Reconstitution System for AHF-rFVIII (ADVATE®)
Pediatric Hemophilia and Post Trauma Stress Disorder (PTSD)
Prevalence of Depression in US Patients with Hemophilia A Compared with a General Medical Population: A Retrospective Database Analysis
Objective: Prevalence of clinical depression in persons with hemophilia (PWH) has been reported to be from 0%–50%. Most papers studied fairly small numbers of PWH; many had no controls and used instruments not validated for…
Don’t Push Your Luck! Educational Board (not Bored) Game for Families Living with Hemophilia
Objective: This poster outlines evaluation of an educational family board game, “Don’t Push Your Luck!” designed to inspire discussion about hemophilia, and help school-age children learn about decision-making. Since children…