Effect of Albumin Fusion on the Biodistribution of Recombinant Factor IX-FP
Objective: The present study has been conducted to explore the biodistribution of rIX-FP, a recombinant fusion protein linking the human coagulation factor IX to human albumin (CSL Behring GmbH), which is currently being…
Great Plains Regional Girls with Bleeding and Clotting Disorders Camp
Biodistribution of rVIIa-FP, a Recombinant Fusion Protein Linking Coagulation Factor VIIa With Albumin, in Rats
Objective: The recombinant fusion protein linking the human coagulation factor VIIa to human albumin, rVIIa-FP (CSL Behring GmbH), is currently undergoing clinical investigation in the clinical trial program PROLONG-7P. The…
Psychosocial Intervention To Improve Compliance with Comprehensive Care Visits
Objective: Patients with hemophilia have been receiving comprehensive care at Hemophilia Treatment Centers (HTC) for the past 30 years which includes: annual medical and psychosocial assessments, training for home infusions of…
Examining The Impact Of Parent Demographics, Child Characteristics And Child Hemophilia Related History On Parental Stress And Parent Support
Prolonged factor IX expression after AAV-mediated gene transfer in adults with severe hemophilia B
Long-Term Follow-Up of Arteriovenous Fistulae in Bleeding Disorders
Objective: Treatment of bleeding disorders consists of factor replacement on-demand in response to acute bleeding or prophylactically to prevent bleeding. Venous access is a critical aspect of hemophilia care. Placement of…
Specialty Pharmacy Educational Program, BE EMPOWERED, decreased joint bleeds in adults and increases RICE utilization among caregivers
Accommodating cultural needs and crossing language barriers in bleeding disorder patients: Results from a provider-patient survey by home infusion provider
Objective: To demonstrate that providing homecare services to bleeding disorder patients with limited English proficiency in a culturally sensitive manner and in their native language can improve quality and outcomes of care…
Understanding the psychosocial undercurrents in spontaneous bleeds in severe hemophilia A to facilitate collaboration and customized/personalized regimens: a case study
Objective: To examine the causes for spontaneous bleeds in severe hemophilia A patients on prophylaxis in an effort to increase care collaboration, decrease these incidents and optimize care. Methods: From…