Global Development Plan for a Double Virus Inactivated Fibrinogen Concentrate for the Treatment of Congenital Fibrinogen Deficiency
Use of a double virally inactivated FVIII/VWF in 30 children and young people with von Willebrands disease - a single centre experience
Clinical Study in Children with Severe Haemophilia A Investigating Efficacy, Immunogenicity, Pharmacokinetics, and Safety of Human-cl rhFVIII
Background: Human-cl rhFVIII is the first recombinant factor VIII concentrate expressed in a human cell line (Human Embryonic Kidney 293F cells). Studies in previously treated severe haemophilia A patients demonstrated bio-…
Results of a prospective, non-interventional clinical study in 170 VWD patients with a new generation of VWF/FVIII concentrate in Germany
Clinical Study to Investigate the Immunogenicity, Efficacy and Safety of Treatment with Human-cl rhFVIII in Previously Untreated Patients with Severe Haemophilia A
Canadian social worker and nurse perspectives on the Hemophilia Experiences, Results and Opportunities (HERO) study results from Canada
Objective: Describe social worker and nurse perspectives on the Hemophilia Experiences, Results and Opportunities (HERO) results from Canada. Methods: Adults with hemophilia (“adults,” ≥18 years) and…
Successful buffalo hump removal using liposuction in two men with severe hemophilia and HIV
Objective: To describe successful buffalo hump removal in 2 patients with Hemophilia and HIV. Methods/Case Description: Development of a dorsocervical fat pad, or buffalo hump, occurs in 2-13 % of HIV…
Efficacy of a strength training program for improving elbow joint range of motion and function in adults with hemophilia
Objective: To investigate the effect of modified pull-up exercises on elbow range of motion (ROM) and function for people with arthropathy secondary to hemophilia and recurrent bleeding Methods: …
Translation and Validation of an Instrument to Measure the Care-related Quality of Life of Informal Caregivers in English for the United States
Objective: Caregivers of hemophilia patients may experience physical, social, emotional and financial problems as a result of their care tasks. Measurement of the caregiver experience is important in hemophilia as the majority…
Stepping Up and Reaching Out to the Community
Objective: Who better to understand and help advocate for the bleeding disorders community than those who live it every day? Step Up Reach Out (SURO) was created to help foster the next generation of leaders in the bleeding…