Assessing and Responding to the Oral Health Care Needs of Adults in a Bleeding Disorders Population
Introduction/Background: Maintenance of oral health is frequently challenging for US adults with a bleeding disorder. Underlying causes are due mainly to (1) lack of dental insurance and (2) lack of knowledge…
Retrospective review of Hemophilia patients before and after treatment with Emicizumab
Objectives: The longer-term clinical outcomes of patients using emicizumab in real world settings are not well documented. This study examined hemophilia patient clinical outcomes, specifically bleed rate, emergency room visits/…
The Moti-VIII Study – Factors for Empowering Mobility and Well-being in Hemophilia A
Unmet Needs in Women with Severe Von Willebrand Disease
Objective: Women with Severe Von Willebrand disease (VWD), including Type 3 VWD, Severe Type 1/1C VWD (VWF ristocetin cofactor and antigen ≤10%), and Severe Type 2A (VWF ristocetin cofactor and antigen ≤10%) are at high risk for…
Characterization of the Early Immune Response to Factor VIII
Behavior and cognition in children and young adults with hemophilia A or B: an update on developmental outcome
The 2020 World Federation of Hemophilia Guidelines for the Management of Hemophilia
A Novel Approach for Rare Bleeding Disorders: Shielded Living Therapeutics
A Review of Current Patient Reported Outcome Measures Used to Assess Mental Health in People with Hemophilia
Continuous infusion of B domain-truncated recombinant factor VIII, turoctocog alfa, for an acute moderate bleeding episode in hemophilia A: a first case report
Objective: To clinically validate previously reported stability experience and describe the utilization of continuous infusion (CI) factor VIII (FVIII) replacement therapy with turoctocog alfa for the management of an acute…