The Red Tie Soiree is the National Bleeding Disorders Foundation’s (NBDF) signature fundraising gala. It is a vital opportunity for you to support NBDF’s mission, help find cures for inheritable blood and bleeding disorders, and prevent…
The majority of patients with severe hemophilia A are routinely treated with either on demand or prophylactic replacement therapy.. Modern hemophilia therapy encourages early initiation of IV factor prophylaxis to children at very young age, aimed…
Pain is one of the most threatening feelings, and people will usually do whatever they can to avoid it. People with hemophilia (PWH) suffer from acute pain from the early days of their life - during blood tests and factor IV infusions. Later, they…
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Nonprofit organizations that provide educational programs and financial assistance to the bleeding disorders community often face barriers to sustaining and/or expanding their efforts. To help address these…
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To educate teens and their siblings on building skills related to self-care, medical independence and living a healthy lifestyle so that they are better prepared to be on their own as they transition to the next stage…
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Clinical profiles of hemophilia B range from mild to severe forms of the disease. Prior studies have investigated the economic burden of hemophilia B, but focused on outcomes within the overall study sample, without…
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Incidence of hemophilia is commonly cited in the literature as 1/5,032 male births (Soucie et al., Am J Hematol 1998). Estimates of the true population prevalence of hemophilia A (HA; factor VIII deficiency) and B (HB…