Gene Therapy DefinedWho is Eligible for Gene TherapyWhat I Can Expect from Gene TherapyRisks Associated with Gene TherapyGene Therapy and Reproduction…
About CVRYour voice is at the center of NBDF’s CVR. This community-powered registry will help researchers understand what it really means to live with a bleeding disorder and how current treatments, therapies, and policies affect the community. CVR…
ParticipantsCVR is open to all people affected by inherited bleeding disorders as well as their immediate family members (parents, spouses, children, siblings, and grandparents).CVR helps researchers understand what it means to live with a bleeding…
ResearchersCVR is expected to be a longitudinal registry--this means that we expect it will continue for many years into the future. This will allow us to gain a deeper understanding of both physical and psychosocial issues facing our community. The…
You are welcome to use the material generously provided by the Nursing Working Group members as intended. However, we respectfully ask that you reference the individual, or individuals, responsible for the material that you use.In these changing…
You are welcome to use the material generously provided by the Physical Therapy Working Group members as intended. However, we respectfully ask that you reference the individual, or individuals, responsible for the material that you use.
In this section, you will find psychosocial and educational topics, including: Adoption, aging, alternative therapies, health reform, insurance and school issues. Article topics are arranged alphabetically with hyperlinks. ADOPTION…
Hemophilia Alliance Advanced Social Workers ConferenceThe Hemophilia Alliance provides member hemophilia treatment centers (HTCs) with resources and services to sustain the comprehensive care model for people with bleeding and clotting disorders.…
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ResearchNational Association of Social WorkersThe NASW website is a prime site for staying on top of social work trends, research and news. By putting "research" in the search area at the top right of the site, social workers…
We apologize, but it seems the page you are looking for is not available.Please note that our organization has recently rebranded from the National Hemophilia Foundation to the National Bleeding Disorders Foundation. As part…