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Home
  • Who We Are
    • Our Story
      • Mission & History
      • What We Do
      • What Do We Value?
      • Health Access
      • NBDF Reports
      • Financial Statements
      • Media Newsroom
      • Educate to Elevate
      • The National Hemophilia Foundation Has a New Name
      • The Red Thread: 75th Anniversary Celebration
    • Our Team
      • Staff
      • Board of Directors
      • MASAC
      • Meet the NYLI
      • Nursing Working Group
      • Physical Therapy Working Group
      • Social Work Working Group
      • LEE Research Advisory Council
    • Our Partners
      • Partners In Progress
      • The ACT Initiative
      • Red Tie Society
      • CDC Coop Agreement
      • Pathway to Cures
    • Careers
      • What Do We Value?
      • Career Opportunities
      • Volunteer Opportunities
  • Bleeding Disorders A-Z
    • Overview
      • Fast Facts
      • What is a Bleeding Disorder?
      • History
      • Types of Bleeds
      • Inhibitors
      • Women and Bleeding Disorders
    • Types
      • Hemophilia A
      • Hemophilia B
      • Von Willebrand Disease
      • Other Factor Deficiencies
      • Inherited Platelet Disorders
    • Treatment
      • Comprehensive Medical Care
      • MASAC For You
      • Treatment Guidelines (MASAC)
      • Current Treatments
      • Innovative Therapies
      • Clinical Trials
      • Shared Decision-Making
      • Hemophilia Treatment Centers
    • Healthcare Coverage
      • Choosing an Insurance Plan
      • Private Insurance
      • Public Insurance
      • Health Insurance Toolkit
  • Educational Programs
    • Education
      • Bleeding Disorders Conference
      • Inhibitor Education
      • Steps for Living
      • Online Education
      • Rare Bleeding Disorders
      • Von Willebrand Disease
      • Mental Health
      • Gene and Innovative Therapies
      • Women
      • Educational Programming
      • Clotting Cascade
    • Training
      • Youth Leadership (NYLI)
    • Outreach
      • THRIVE
      • THRIVE - en español
      • Undiagnosed
      • Guías Culturales
  • Advocacy
    • Federal Priorities
      • Access to Care
      • Federal Programs
      • Medicare
      • Medicaid
      • Blood & Blood Product Safety
      • Make All Copays Count
    • State Priorities
      • Utilization Management
      • Patient Out-of-Pocket Expenses
      • Medicaid
    • How You Can Take Action
      • Voices for Policy Change!
      • Washington Days
      • Advocacy Do’s and Don’ts
      • 6 Steps for Grassroots Advocacy
      • Tell Your Story
    • Managed Care & Payers
      • Collaborating on Coverage
      • Quality of Care Guidelines
      • CME/CE Webcast Series
      • Educational Web Portal
      • Quality Improvement & Cost Management
  • Research
    • Research Projects
      • Foundation Research
      • Funded by Foundation
      • Presented at Our Conference
      • Research Journal Club
      • Research Roundtable
      • Clinical Trial Essentials
      • coreHem Mental Health Tool
    • Fund Your Research
      • Judith Graham Pool Postdoctoral Research Fellowship
      • NBDF-Sanofi Career Development Award
      • Nursing Excellence Fellowship
      • Physical Therapy Excellence Fellowship
      • Social Work Excellence Fellowship
    • Community Voices in Research
      • What is CVR?
      • How & Why Should I Participate?
      • Impact on Research
      • Frequently Asked Questions
      • Login to CVR
    • Bleeding Disorders Research Collaborative
      • What is the Bleeding Disorders Research Collaborative?
      • The BDRC Structure and Research Priorities
      • Lived Experience Experts (LEEs) Leading the Way
      • How to Get Involved
      • Our Journey Together
      • BDRC Resources
  • Healthcare Professionals
    • Guidelines on Care
      • Comprehensive Care
      • MASAC Documents
      • MASAC Minutes
      • Products Licensed (US)
      • Emergency Management
      • Snapshots of VWD Guidelines
    • Education & Resources
      • NBDF-Takeda Clinical Fellowship Program
      • NBDF’s Collaborative Learning Exchange
      • Online Education for Providers
      • Live & Online Learning (Partners)
      • Rare Coagulation Disorders Resource Room
      • Peer-reviewed Journals
      • NBDF Publications
      • Other Associations
    • Allied Healthcare
      • Nursing
      • Physical Therapy
      • Social Work
      • Other Interdisciplinary Healthcare Providers
  • Community Resources
    • Request Information
      • Contact Us
      • The Neil Frick Resource Center
      • Read Our Publications
      • Subscribe for Email Updates
      • Get HemAware Magazine
      • Newsletter Archive
      • Wednesday Webinar Series
    • Resources Near You
      • Chapters
      • Hemophilia Treatment Centers
      • Clinical Trials
      • Bleeding Disorders Camps
      • Community Voices in Research
    • Financial Assistance
      • Scholarships
      • Patient Assistance Programs
  • Make a Difference
    • Donate
      • Donate Now
      • Donor Advised Funds
      • Donate Securities or Cryptocurrency
      • Give Monthly
      • Planned Giving
    • Join Us
      • Become a Corporate Partner
      • Bleeding Disorders Awareness Month
      • Find a Walk
      • Participate in Research/CVR
      • Why Give?
    • More than a Donation
      • Create Your Own Fundraiser
      • Fundraise on Social Media
      • Run in a Marathon
      • Matching Gifts
  • Give
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MASAC Document 140 - Resolution on Reporting of Possible West Nile Virus Cases
West Nile Virus (WNV) is an encapsulated flavivirus that is spread from infected birds to humans by mosquito bites. It can also be transmitted by receipt of blood transfusions and organ transplants. It was introduced into the United States in 1999.…
MASAC Document 144 - Statement on the Role and Responsibilities of the Principal Investigator in Bleeding Disorder Clinical Trials
A critical element of clinical research is the relationship between the trial participant and the Principal Investigator (PI). Subjects involved in clinical research programs are dependent on the PI for guidance and education as well as for their…
MASAC Document 145 - Recommendation on Funding of the Office of Cellular and Gene Therapies
Whereas the Office of Cellular and Gene Therapies (OCGT) of the FDA is responsible for regulatory oversight of therapies which may cure bleeding disorders; Whereas the OCGT, a part of the Center for Biologics Evaluation and Review (CBER), has…
MASAC Document 146 - Recommendation Regarding Medicaid Inpatient Clotting Factor Replacement Therapy Reimbursement for Hemophilia
It is well documented that persons with congenital hemophilia and acquired hemophilia require treatment with clotting factor concentrates not only for treatment of bleeding episodes but also to prevent bleeding when admitted to the hospital for…
MASAC Document 148 - Resolution on NHF Educational Program for Fellows
MASAC recognizes that there is a dearth of new physicians exiting training programs with clinical and research competency in hemostasis and thrombosis. To address this critical manpower shortage, MASAC proposes that NHF evaluate the use of…
MASAC Document 287 - Resolution on the World Health Organization Essential Medicine List
Revisions: 149.Whereas, the World Health Organization Essential Medicine List (WHO-EML) presents the minimum medication needs for a basic health care system. The most efficacious, safe and cost-effective medicines for priority conditions are…
MASAC Document 150 - Recommendations on the Use of Blood Products During Pregnancy and Testing for Parvovirus B19
Parvovirus B19 infection during pregnancy may cause fetal anemia, hydrops fetalis, and fetal demise. Infection during the third trimester can induce severe congenital hypoplastic anemia in the infant. Parvovirus B19 may be transmitted by blood…
MASAC Document 152 - Recommendations Regarding the Inclusion of Thrombophilia in NHF Research and Educational Efforts
Funding for hemophilia clinics continues to be flat, and the ability to maintain set-aside services for hemophilia continues to dwindle. In addition, the supply of informed, trained health care providers continues to decrease, and efforts to recruit…
MASAC Document 153 - Recommendation Concerning Reimbursement for Recombinant Clotting Factor Concentrates
There are now available several different recombinant factor products for the treatment of hemophilia. There are specific considerations in prescribing a product for any individual patient. Therefore MASAC recommends that insurance companies and…
MASAC Document 154 - Recommendations Regarding the Use of Antiretroviral Therapy in the Treatment of HIV Infection
Much has changed since the previous MASAC Recommendation #124. Although the changes are summarized briefly below, MASAC strongly recommends that providers refer to the source document referenced below, entitled "Guidelines for the Use of…

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