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Home
  • Who We Are
    • Our Story
      • Mission & History
      • What We Do
      • What Do We Value?
      • Health Access
      • NBDF Reports
      • Financial Statements
      • Media Newsroom
      • Educate to Elevate
      • The National Hemophilia Foundation Has a New Name
      • The Red Thread: 75th Anniversary Celebration
    • Our Team
      • Staff
      • Board of Directors
      • MASAC
      • Meet the NYLI
      • Nursing Working Group
      • Physical Therapy Working Group
      • Social Work Working Group
      • LEE Research Advisory Council
    • Our Partners
      • Partners In Progress
      • The ACT Initiative
      • Red Tie Society
      • CDC Coop Agreement
      • Pathway to Cures
    • Careers
      • What Do We Value?
      • Career Opportunities
      • Volunteer Opportunities
  • Bleeding Disorders A-Z
    • Overview
      • Fast Facts
      • What is a Bleeding Disorder?
      • History
      • Types of Bleeds
      • Inhibitors
      • Women and Bleeding Disorders
    • Types
      • Hemophilia A
      • Hemophilia B
      • Von Willebrand Disease
      • Other Factor Deficiencies
      • Inherited Platelet Disorders
    • Treatment
      • Comprehensive Medical Care
      • MASAC For You
      • Treatment Guidelines (MASAC)
      • Current Treatments
      • Innovative Therapies
      • Clinical Trials
      • Shared Decision-Making
      • Hemophilia Treatment Centers
    • Healthcare Coverage
      • Choosing an Insurance Plan
      • Private Insurance
      • Public Insurance
      • Health Insurance Toolkit
  • Educational Programs
    • Education
      • Bleeding Disorders Conference
      • Inhibitor Education
      • Steps for Living
      • Online Education
      • Rare Bleeding Disorders
      • Von Willebrand Disease
      • Mental Health
      • Gene and Innovative Therapies
      • Women
      • Educational Programming
      • Clotting Cascade
    • Training
      • Youth Leadership (NYLI)
    • Outreach
      • THRIVE
      • THRIVE - en español
      • Undiagnosed
      • Guías Culturales
  • Advocacy
    • Federal Priorities
      • Access to Care
      • Federal Programs
      • Medicare
      • Medicaid
      • Blood & Blood Product Safety
      • Make All Copays Count
    • State Priorities
      • Utilization Management
      • Patient Out-of-Pocket Expenses
      • Medicaid
    • How You Can Take Action
      • Voices for Policy Change!
      • Washington Days
      • Advocacy Do’s and Don’ts
      • 6 Steps for Grassroots Advocacy
      • Tell Your Story
    • Managed Care & Payers
      • Collaborating on Coverage
      • Quality of Care Guidelines
      • CME/CE Webcast Series
      • Educational Web Portal
      • Quality Improvement & Cost Management
  • Research
    • Research Projects
      • Foundation Research
      • Funded by Foundation
      • Presented at Our Conference
      • Research Journal Club
      • Research Roundtable
      • Clinical Trial Essentials
      • coreHem Mental Health Tool
    • Fund Your Research
      • Judith Graham Pool Postdoctoral Research Fellowship
      • NBDF-Sanofi Career Development Award
      • Nursing Excellence Fellowship
      • Physical Therapy Excellence Fellowship
      • Social Work Excellence Fellowship
    • Community Voices in Research
      • What is CVR?
      • How & Why Should I Participate?
      • Impact on Research
      • Frequently Asked Questions
      • Login to CVR
    • Bleeding Disorders Research Collaborative
      • What is the Bleeding Disorders Research Collaborative?
      • The BDRC Structure and Research Priorities
      • Lived Experience Experts (LEEs) Leading the Way
      • How to Get Involved
      • Our Journey Together
      • BDRC Resources
  • Healthcare Professionals
    • Guidelines on Care
      • Comprehensive Care
      • MASAC Documents
      • MASAC Minutes
      • Products Licensed (US)
      • Emergency Management
      • Snapshots of VWD Guidelines
    • Education & Resources
      • NBDF-Takeda Clinical Fellowship Program
      • NBDF’s Collaborative Learning Exchange
      • Online Education for Providers
      • Live & Online Learning (Partners)
      • Rare Coagulation Disorders Resource Room
      • Peer-reviewed Journals
      • NBDF Publications
      • Other Associations
    • Allied Healthcare
      • Nursing
      • Physical Therapy
      • Social Work
      • Other Interdisciplinary Healthcare Providers
  • Community Resources
    • Request Information
      • Contact Us
      • The Neil Frick Resource Center
      • Read Our Publications
      • Subscribe for Email Updates
      • Get HemAware Magazine
      • Newsletter Archive
      • Wednesday Webinar Series
    • Resources Near You
      • Chapters
      • Hemophilia Treatment Centers
      • Clinical Trials
      • Bleeding Disorders Camps
      • Community Voices in Research
    • Financial Assistance
      • Scholarships
      • Patient Assistance Programs
  • Make a Difference
    • Donate
      • Donate Now
      • Donor Advised Funds
      • Donate Securities or Cryptocurrency
      • Give Monthly
      • Planned Giving
    • Join Us
      • Become a Corporate Partner
      • Bleeding Disorders Awareness Month
      • Find a Walk
      • Participate in Research/CVR
      • Why Give?
    • More than a Donation
      • Create Your Own Fundraiser
      • Fundraise on Social Media
      • Run in a Marathon
      • Matching Gifts
  • Give
  • Subscribe
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MASAC Document 115 - Recommendations Regarding Central Venous Access Devices Including Ports and Passports
Treatment methods for patients with hemophilia now include prophylactic or immune tolerance regimens that require frequent regular infusions of clotting factor concentrate, often beginning at an early age. If such regimens are undertaken, central…
MASAC Document 119 - Recommendation Regarding Post HIV-Exposure Chemoprophylaxis
When a sexual or nonsexual household exposure to HIV has occurred, at present it is widely recommended that antiretroviral treatment begin promptly, preferably within a few hours of exposure. Therefore, MASAC recommends that if such an exposure…
MASAC Document 121 - Recommendations for Immunization of HIV-Infected Individuals
Much has changed since the previous MASAC Recommendation #36. Although the changes are summarized briefly below, MASAC strongly recommends that providers refer to the source document referenced below, entitled "2001 USPHS/IDSA Guidelines for the…
MASAC Document 122 - Recommendations Concerning the Use of Antiretroviral Drugs During Pregnancy to Prevent Transmission of HIV to the Infant
Much has changed since the previous MASAC Recommendation #42. Although the changes are summarized briefly below, MASAC strongly recommends that providers refer to the source document referenced below, entitled "Public Health Service Task Force…
MASAC Document 123 - Recommendations Regarding Hepatitis B, Hepatitis C and HIV Postexposure Chemoprophylaxis
Much has changed since the previous MASAC Recommendation #43. Since the 1998 HIV exposure guidelines, changes have included newer FDA-approved antiretroviral agents, new information regarding resistance testing of the source of the exposure, and…
MASAC Document 128 - Recommendations for Hepatitis A and B Immunization of Individuals with Bleeding Disorders
The CDC Advisory Committee on Immunization Practices (ACIP) has made specific recommendations regarding immunization for hepatitis A and B and whether to monitor response. Although these recommendations are summarized briefly below, MASAC strongly…
MASAC Document 269- Standards and Criteria for the Care of Persons with Congenital Bleeding Disorders
Revisions: 132 Standards and Criteria for the Care of Individuals with Bleeding Disorders “Hemophilia Treatment Centers (HTCs) provide value to people with hemophilia and other congenital coagulation disorders, their families and caregivers,…
MASAC Document 136 - Standard on Disclosing Conflicts of Interest for Individuals Conducting Clinical Research on Bleeding and Clotting Disorders
The National Hemophilia Foundation and its Medical and Scientific Advisory Council are committed to clinical and basic research endeavors aimed at improving the care of or providing the cure for bleeding and clotting disorders. This includes…
MASAC Document 137 - Recommendations for Conducting Gene Transfer Clinical Trials in Persons with Bleeding Disorders
Administration of normal coagulation factor genes to individuals with hemophilia, von Willebrand disease, and other rarer coagulation factor deficiencies represents the best hope for preventing bleeding episodes and their associated morbidity and…
MASAC Document 139 - Recommendations on the IQPP and QSEAL Programs of the Plasma Protein Therapeutics Association
The Plasma Protein Therapeutics Association (PPTA) is a worldwide association of manufacturers of products from human plasma such as clotting factor concentrates. In 1991, the PPTA initiated what is now known as the International Quality Plasma…

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