Val and I first got to know one another 30 years ago, when we were opposing one another in an election for president of the National Hemophilia Foundation (US). I was fighting for HIV/AIDS advocacy from within, from the Board, and Val was part of a…
FOR IMMEDIATE RELEASE
Media & Community Inquiries
Brett Spitale, VP of Advancement
Dec. 31, 2021 – New York, NY – NHF is deeply saddened to announce that former NHF CEO and community member, Val Bias, passed away suddenly…
WASHINGTON, D.C.— December 31, 2021 — In response to additional rulemaking for the Centers for Medicare & Medicaid Services’ (CMS) Notice of Benefit and Payment Parameters (NBPP) for 2023, the All Copays Count Coalition, which comprises more…
One patient changed Dr. Amy Dunn’s entire career the first-year of residency. It was then that Dr. Dunn diagnosed her first patient with hemophilia. She became “hooked” on hematology and “knew that it was the field for me.” Now the director of…
BioMarin recently shared a community update on their Hemophilia A Clinical Development Program for valoctocogene roxaparvovec, the company’s investigational gene therapy.
valoctocogene roxaparvovec is being investigated for safety and efficacy…
New Hemophilia Treatments: Implications for the Coagulation Laboratory
Speaker(s): Dr. Len Valentino
NHF's Wednesday Webinars are a free education series open to providers and community members. Register to…
NHF is thrilled to announce that the 74th Annual Bleeding Disorders Conference (BDC) will take place from August 25 to 27, 2022, in Houston, Texas. After two years of uncertainty, we are excited to gather our community in person…
Educación 2025Vivir con un inhibidor plantea preguntas y preocupaciones únicas tanto a las personas como a sus familias. Las oportunidades educativas de la NBDF (Fundación Nacional de Trastornos Hemorrágicos) están diseñadas para abordar estas…
Applications of Gene Editing in Medical Science
Speaker(s): Dr. Mohankumar K M. (Kumarasamypet Murugesan Mohankumar)
Did you miss the February 2nd Wednesday Webinar? If so click here to listen to Dr Mohankumar K…