During this session participants will learn from a panel of healthcare providers, including a genetics counselor, obstetrician/gynecologist and hematologist. The panel will discuss topics such as genetic counseling, preparing for pregnancy and birth…
NHF Statement In Response to New Michigan Law:
“The National Hemophilia Foundation thanks Governor Whitmer for taking steps to address the public health crisis that is period poverty. For girls, women, and all people who menstruate or have the…
November 5, 2021 – On Tuesday, November 4, the U.S. Food and Drug Administration (FDA) placed the Pfizer/Sangamo hemophilia A gene therapy program, including the pivotal phase 3 AFFINE study(NCT04370054), with giroctocogene…
Objective:
To examine the frequency and methods used to screen patients for substance use and behavioral health disorders in Hemophilia Treatment Centers (HTC). We hypothesized that inconsistencies in methods utilized and…
Menstruation, pregnancy, labor and delivery all present challenges for women with hemophilia. Hear from experts and real women who will share their journey from diagnosis to managing the day-to-day physical and emotional impacts of living with the…
National Hemophilia Foundation (NHF) Research Journal Club (RJC) December 2021: Numerous Perspectives, One Goal: Achieving Optimal Pain Management in Inherited Bleeding Disorders (IBDs).Date and Location of Activity…