Pain assessment and treatment in bleeding disorder care: The need for social work specific education
Objective:
Persons with bleeding disorders experience pain in association with needle pokes, joint and muscle bleeds and permanent tissue damage. The impact of this pain on patients can include time off school or work, a…
Pase las tardes de los Martes con el equipo de Educación para el Empoderamiento de NHF. A lo largo de las próximas cuatro semanas, presentaremos talleres de nuestras nuevas series educativas, que abarcan una gran variedad de temas. Cada serie…
uniQure and CSL Behring recently announced that etranacogene dezaparvovec, an investigational hemophilia B gene therapy currently in clinical trials, has achieved a primary endpoint of “non-inferiority” in annualized bleeding rate (ABR) 18-months…
Hemophilia Gene Therapy Value Assessment: Methodological Challenges and Recommendations
Speaker(s): Dr. Louis Garrison
NHF's Wednesday Webinars are a free education series open to providers and community…
Evaluation of Sexual Health in People with Hemophilia
Speaker(s): Mark Skinner, Dr. Federico Germini, Dr. Greig Blamey
NHF's Wednesday Webinars are a free education series open to providers and community…
The onset of childbirth and the postpartum period are times when women with von Willebrand disease (VWD) are at an increased risk for excessive bleeding, exposing them to further, and in some instances, serious complications. While there exist…
Interested in working in the hematology field, but don’t think that medical school is right for you? Consider an allied health field, like genetic counseling or physical therapy. Recently, NHF sat down with Mitch Starkman, a physical therapist,…
Dr. Shani Johnson is a clinical postdoctoral fellow within the Department of Pediatrics, Section of Pediatric Hematology/Oncology at Baylor College of Medicine and Texas Children's Hospital. Dr. Johnson earned her medical degree from Duke University…
Since my first year of medical school, I have been actively involved in sickle cell disease (SCD) research with a focus on cognitive outcomes of patients affected by the disease. During my first year of medical school, I collaborated with my mentors…