Hemophilia Gene Therapy Value Assessment: Methodological Challenges and Recommendations
Hemophilia Gene Therapy Value Assessment: Methodological Challenges and Recommendations Speaker(s): Dr. Louis Garrison NHF's Wednesday Webinars are a free education series open to providers and community…
Evaluation of Sexual Health in People with Hemophilia
Evaluation of Sexual Health in People with Hemophilia Speaker(s): Mark Skinner, Dr. Federico Germini, Dr. Greig Blamey NHF's Wednesday Webinars are a free education series open to providers and community…
Clinical Study and New Website to Focus on von Willebrand Disease and Pregnancy
The onset of childbirth and the postpartum period are times when women with von Willebrand disease (VWD) are at an increased risk for excessive bleeding, exposing them to further, and in some instances, serious complications. While there exist…
Allied Health Careers in Hematology: Physical Therapy & Genetic Counseling
Interested in working in the hematology field, but don’t think that medical school is right for you? Consider an allied health field, like genetic counseling or physical therapy. Recently, NHF sat down with Mitch Starkman, a physical therapist,…
Determining Clinical Severity and Molecular Profiles of Acute Chest Syndrome in Sickle Cell Disease
Dr. Shani Johnson is a clinical postdoctoral fellow within the Department of Pediatrics, Section of Pediatric Hematology/Oncology at Baylor College of Medicine and Texas Children's Hospital. Dr. Johnson earned her medical degree from Duke University…
A Prospective Study of Clinical and Imaging Assessment of Cognitive Function and its Association with Anemia in Adults with Sickle Cell Disease
Since my first year of medical school, I have been actively involved in sickle cell disease (SCD) research with a focus on cognitive outcomes of patients affected by the disease. During my first year of medical school, I collaborated with my mentors…
Sigilon Announces a Priority Shift in Light of Clinical Trial Setbacks
Sigilon Therapeutics recently announced a “strategic reprioritization,” as the company shifts focus to their non-hemophilia, investigational therapies, including those for MPS-1 and diabetes. This closely follows recent setbacks associated with…
The impact of face-to-face social work meetings in bleeding disorder care
NHF Announces Jeanne Marie Lusher (JML) Diversity Fellowship Recipients
For Immediate ReleaseMedia Contact:Ilana Ostriniostrin@hemophilia.org212-328-3769New York, NY -- The next generation of researchers are continuously inspiring and…
New Study Looks at Physical Activity Risk in Patients with Hemophilia A
Results of a recently published study suggest that intense physical activities, particularly those that include a high collision-risk, can increase bleeding risk in individuals with severe or moderately severe hemophilia A. Investigators also found…