Rare Bleeding Disorders in the Plains Community
Speaker(s): Dr. Magdalena Lewandowska and Dr. Zineb Ammous
NHF's Wednesday Webinars are a free education series open to providers and community members. Register…
Takeda recently announced that the U.S. Food and Drug Administration (FDA) has approved VONVENDI® for routine prophylaxis to reduce the frequency of bleeding episodes in adults with severe Type 3 von Willebrand disease (VWD) receiving on-demand…
Objective:
To investigate how bleeding disorder characteristics influence patient perceived challenges and management strategies.
Methods:
This is a mixed-method, retrospective, cross-sectional continuation…
Join us for our Advocacy Ambassador Training on Wednesday, February 23rd at 7:00 pm! We will learn the issues, how to tell your story, how to effectively communicate with legislators, and how you can make a difference! This program is for members of…
Join us for another night of drag queen bingo from the comfort of your own home! Expect a night of entertainment and prizes! Registration includes Zoom link to watch the performance, a bingo card, and 4 rounds of bingo. Additional cards can be…
Join us for a cook-along program that is built for people of all ages! This program is led by Medexus Community Experience Manager, Fitness Enthusiast & Amateur Chef, Myles Ganley. Understand the components of food to help balance not only a…
This is the largest educational gathering of the NC bleeding disorders community. There are educational sessions for everyone, including those with hemophilia, platelet disorders, ultra-rare factor deficiencies, and von Willebrand disease, as well…