Medscape has launched a new enduring activity designed to enhance clinicians’ awareness of gene therapy for hemophilia and increase their confidence when it comes to the eventual integration of these paradigm-shifting therapeutics into the clinical…
Your gift, no matter the size, provides critical support to the inheritable blood disorders community. From researching better treatment options, to advocating for quality healthcare, to creating tailored educational events, NBDF’s work for this…
Introduction:
Photovoice is a qualitative research method that has been used for communities to share pictures as a tool for discussion that is often used at a grassroots advocacy level. Photovoice can show both strengths about a…
The Kevin Child Scholarship remembers Kevin Michael Child (9/14/67 - 6/7/89), the youngest of 7 children, born and raised in Basking Ridge, NJ. As a kid Kevin was the poster child for hemophilia in New Jersey. He was among the first to home-infuse…
Rare Bleeding Disorders in the Plains Community
Speaker(s): Dr. Magdalena Lewandowska and Dr. Zineb Ammous
NHF's Wednesday Webinars are a free education series open to providers and community members. Register…
Takeda recently announced that the U.S. Food and Drug Administration (FDA) has approved VONVENDI® for routine prophylaxis to reduce the frequency of bleeding episodes in adults with severe Type 3 von Willebrand disease (VWD) receiving on-demand…
Objective:
To investigate how bleeding disorder characteristics influence patient perceived challenges and management strategies.
Methods:
This is a mixed-method, retrospective, cross-sectional continuation…
Join us for our Advocacy Ambassador Training on Wednesday, February 23rd at 7:00 pm! We will learn the issues, how to tell your story, how to effectively communicate with legislators, and how you can make a difference! This program is for members of…
Join us for another night of drag queen bingo from the comfort of your own home! Expect a night of entertainment and prizes! Registration includes Zoom link to watch the performance, a bingo card, and 4 rounds of bingo. Additional cards can be…