Stay informed with the latest updates for the inheritable blood disorders community.

          Medical
          DEI - Artwork of Diverse Group of People Men Women
          Rare Disease Fellowship Program Now Accepting Applications!
          Medical
          MASAC Prophylaxis Recommendations
          New MASAC Documents Approved on Physical…
          Medical
          Nasal Spray
          Updates on Generic Desmopressin Product
          Peer-Reviewed Journal Summaries
          Gene Therapy Helix
          MLOF Genotyping Project Informed Inhibitor Risk
          Industry
          Research Blood Disorder Vial
          FDA Requests Additional Information on Concizumab from Novo Nordisk
          Advocacy & Legislative
          Government Relations Update - April 2023
          Government Relations Update - April 2023
          Press Releases
          Upcoming Wednesday Webinar Schedule Released
          NBDF & Community
          Meet Karina - Employee Highlight
          Employee Highlight - Meet Karina Lopez, MPH!
          NBDF & Community
          Start the Conversation: How to Engage Unengaged Communities
          NBDF & Community
          NHF Zoom BG 75th
          Community Member Spotlight - Eldon Ham
          Press Releases
          Pathway to Cures Appoints Investment Committee
          Pathway to Cures Appoints Investment Committee
          Advocacy & Legislative
          Coalition Advocates for Substance Use…
          Industry
          Two Doctors/Researchers discussing data
          Sanofi Announces Publication of Two Phase 3 Fitusiran Trials
          NBDF & Community
          Washington D.C. - Capitol Building
          Government Relations Update - March 2023
          NBDF & Community
          Start the Conversation: From Patient to Physician