Stay informed with the latest updates for the inheritable blood disorders community.

Advocacy & Legislative
Government Relations Update - April 2023
Government Relations Update - July 2025
Peer-Reviewed Journal Summaries
Image of genes linking
Authors Discuss Slow Uptake of Hemophilia Gene Therapies
NBDF & Community
Medical documents under a stethosecope
Medicaid Data Shared with Immigration Authorities
Industry
Research looking into a microscope
Be Biopharma Announces First Hemophilia Patient Dosed with New Cell…
NBDF & Community
Pathway to Cures
Pathway to Cures Welcomes Dr. Sylvia Fong
NBDF & Community
A research dish and a dropper with fluid coming out
National Research Blueprint Becomes Bleeding Disorders Research…
Industry
Doctor speaking with a boy with his father present
New Trial Data Suggests Oral ITP Therapy Effective in Children and…
Peer-Reviewed Journal Summaries
Literature Review Reaffirms Clinical Relevance of Von Willebrand…
Industry
A man sitting at his computer
Pfizer Announces Phase 3 Trial Results for Hemophilia/Inhibitor Therapy
NBDF & Community
A man holding his knee experiencing joint pain
NFRC Features Resources Supporting Joint Heath in People with…
Medical
A doctor sitting with her patient reviewing medical material
Access New Healthcare Provider Education on Bone…
NBDF & Community
A candlelight vigil
In Memoriam: Carol Kasper, MD
Advocacy & Legislative
Capitol Hill picture
Government Relations Update - June 2025
Advocacy & Legislative
NBF Logo News Option 1
NBDF Statement on Passage of HR 1
Industry
Two hands holding blood drop cut outs
Investigational Data on VWD and Glanzmann Thrombasthenia…