This year’s Victor Grifols Roura Medical Pre-conference Symposium focused on several key aspects of “Bone Health and Pain in Bleeding Disorders.” A few leading clinician-researchers in the field were brought together to review the pathophysiology of bone disease, share current research data on bone health and the impact of pain in bleeding disorders, as well as offer physical therapy strategies and interventions for managing joints and associated pain.
Musculoskeletal ultrasound has gradually become a staple in many hemophilia treatment centers. This unique tool is used not only to detect bleeding episodes but also to follow joint health over years. In this session, we will talk about how MSKUS can benefit you and how one day this technology may become a common tool in home use.
Staying active is imperative for people with bleeding disorders, it helps you retain and regain joint health, prevent mobility issues and lead to a better quality of life. Join this presentation to find motivation, support, and easy-to-use resources that can help you find the sport or exercise that's the right fit for you.
Many people with bleeding disorders find that bleeding-related pain and joint damage impact their quality of life. This session will improve understanding of how pain affects people with bleeding disorders and approaches for managing pain. It will also provide resources for communicating with your provider to ensure that pain associated with bleeding and joint damage is addressed appropriately.
Pain plays a substantial role in many people’s lives, including those with bleeding disorders. This session unpacks the impact of psychosocial aspects on the experience of pain and how addressing these can benefit the whole person.
NHF's Wednesday Webinars for April 2021 will feature an array of speakers and topics of interest to both healthcare providers and patients and families with blood disorders alike.
April Webinars
All webinars are from 2:00pm-3:00pm ET.
Throughout the different stages of living with a bleeding disorder, we can be or become immobile at one point or another. During this session, you will learn movement and meditation techniques that alleviate stress and anxiety that come along with a bleeding disorder.
Given relatively limited literature specifically on return to physical activity after injury for people with bleeding disorders, many physical therapists may lack competence in developing tailored recovery plans and providing prudent guidance to patients and their families. We will consider and apply recommended guidelines for return to activity and sport, critically appraise existing return to activity evaluation tools and applications, and compare and contrast return-to-work evaluation tools and applications for people with bleeding disorders.
Total joint replacements can be performed safely in people with bleeding disorders. In this session, we will address realistic expectations, possible complications, and potential outcomes of total joint replacement surgery in patients with bleeding disorders.
Let's get moving! This free webinar, led by expert physical therapists, will help you find the right activity for you. You will learn how to work with your healthcare providers to find engaging exercises that will benefit you, regardless of your age, current fitness level -- and be safe for you as a person with a bleeding disorder. Register today to take a healthy step!
It is a reality familiar to most adults with hemophilia of a certain age: repeated joint bleeds which subsequently causes joint deterioration, affecting everyday quality of life. But the story does not have to end there. Learn how prophylactic therapy can be used to halt the momentum of degenerative joint damage, decrease pain and help you regain mobility.
Transcription of "The Advantage of Prophylaxis for Adults with Joint Issues"
Parenting a child with a bleeding disorder can come with many questions. Come ready to get your questions answered. In this session, you will learn how to encourage your baby to be active, explore safely and how to handle potential accidents as they reach milestones in their physical development.
With all the fitness apps out there, it can be overwhelming to decide the best fit for you. In this session, we will discuss the role technology can play in starting and staying active. Learn suggestions of fitness apps to use to keep you motivated and living a healthy lifestyle.
You will learn the anatomy and function of the elbow and how to manage the elbow joint with activities of daily life and physical activity.
You will learn signs of a muscle bleed, common causes and locations, how to modify activities, and physical therapy tips.
Meet the joint, part two will delve into the knee. You will leave this session with an understanding of the anatomy and function of the knee, and the impact and management of a knee joint bleed in terms of physical activity.
