National Research Blueprint Summit

Join us at the National Research Blueprint (NRB) Summit on January 25 – 27 where we will be presenting the progress to date and engage in fruitful conversation to explore the next steps. See the detailed agenda by clicking this link.

Register to the virtual portion of the meeting.

In recent years, the inherited bleeding disorders community has seen significant advancements in care, thanks to new medicines and technologies, and improved diagnostics. Yet there are still important and persistent gaps in care today, particularly for those with rare disorders and underserved populations, such as women with bleeding disorders.

NBDF has taken the lead on a community-driven journey to shape the future of research for bleeding disorders. Our goal is to establish a clear understanding of the most pressing issues challenging people and families with bleeding disorders. This broad effort aims to bring the experiences of people who live with bleeding disorders to the forefront of transformational research and examine where research can have the most community impact.

You can learn more about the National Research Blueprint in a 2023 supplement of Expert Reviews in Hematology.


What is the National Research Blueprint? - Powerpoint Blueprint Screenshot


We're changing the future of care for BD's


"There are a lot of opportunities for research to understand more about the experience of living with a bleeding disorder, and to make lives better until we can find a cure."

– Listening Session Participant


Read more from NBDF president and chief executive officer Leonard Valentino, MD, about how this blueprint can make a meaningful difference.


How can you participate?