With new treatments, remote work options, and an ever-changing economy, work and career decision-making can feel like a whole new calculation these days. This session will cover what to consider about job options when you have a bleeding disorder, whether or what disclosure about your bleeding disorder should be made, how to communicate about needed accommodations, and what rights you have as a job applicant and as an employee.
NHF sat down with NYLI member Garrett H. to hear more about why he joined NYLI and what others should consider when filling out their application.
During COVID-19, many children are now figuring out how to learn online through virtual schooling. Many parents and caregivers are now tasked with balancing work, online school, and child care. This session will discuss strategies, tips, and stories of how to navigate the online school and virtual learning with a child who has a bleeding disorder.
What does it mean to be a future leader of the Bleeding Disorders Community? Is it possible to make a difference at my chapter while I'm still a teen? If you're looking to get involved these questions are probably on your mind. Come meet members of NBDF's National Youth Leadership Institute (NYLI), who will share how they've been able to make a difference through Education, Advocacy, and Chapter Work training. Not only are they making a difference - they're leveling up in the real world as a result.
In this session, we will evaluate bleed presentation in children with bleeding disorders at 3 to 5 years of age, discuss educational tools and safety guidelines for caregivers, and analyze developmentally appropriate activities for children with bleeding disorders in this age group.
No matter what setting, be it school, day care or the treatment center, we all want to be the best advocate for our child. But sometimes this is easier said than done. As parents and caregivers of young children with hemophilia and an inhibitor many of us know all too well that anxiety, frustration and miscommunication can thwart even the best of intentions.
Deciding when and how to talk about a bleeding disorder can be challenging, but it is an important part of life for people with bleeding disorders and caregivers. This session explores ways to communicate about bleeding disorders in real-life situations. Topics covered may include social situations, dating and relationships, employment, disclosure to family, and social media.
Speakers:
Edward Kuebler, MSW, LLC
Cathy Tiggs, MSSA, LISW
Parenting a child with a bleeding disorder can come with many questions. Come ready to get your questions answered. In this session, you will learn how to encourage your baby to be active, explore safely and how to handle potential accidents as they reach milestones in their physical development.
